Hello all. I am just under three years past surgery where I went from a J-pouch to ileostomy and Barbie butt. Just two days ago, I woke up having major pain. It probably could be phantom rectum, but I also get pain in the lower back and some lower abdomen burning. I have had no issues here since 3 months after surgery where I became septic due to a hair in the closure causing a tiny hole. It hurts to sit, lay, walk. Feels like a lot of pressure just sitting there. Does anyone have any thoughts or have gone through this? I am new to NC and will hit my 90 days at my new job in a couple of days for insurance to start. I am ready to go to the hospital.
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We sat down with two influential people in the ostomy community, to find out how they cope during challenging times.
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