Hi everyone! I was just out loud! I have a couple of Questions for all of you ...Please be totally honest..there no such thing here as a cookie cutter or text book answers
1.What has your disease taken away from you?
....examples would be..they took a body parts from me and I left with this bag, I am mad because I had big plans when I was young and I was unable to fullfill my dreams,I didnt get to go to school like normal kids because I had tutor in the hospital,hard to make friends,hard to tell friends what I have because i'm embarrassed,taking my teenage years away from me,Made my parents and family worry,not keeping a boyfriend,not getting married ,not having children, not falling in love, having children and it leaves your body unable to care for that child,letting other people help raise her because I was so sick,having a family that thinks they know it all,tired of people nagging me about my weight or diet or how to take care of myself and disease,mad because I dont look sick...people dont believe i'm sick,mad because my care faild..twice,mad because I lost my marriage because of my selfishness,Having to miss family events,lost myfelf in addiction and depression,I cry because I see the disapointment in my childs eyes when I say "not now... mommy doesnt feel well tonight,or I fall asleep first so I dont have to be intament with my partner, I hate how it made me feel to have this ugly appliance on me,not sexy anymore,unloved, They took my confidence they day they gave me the ostomy,took my life away from me I had so many plans! These are someof the emotions that I remember going though for the last 26 years of dealling with this disease... They always seemed to always be negative..and with that negativaty I lost so much in my life untill one day years and years had gone by......I asked a differant question!
2.What has your disease given back to you ?
....examples would be..I lived because of the ostomy bag, I just needed to make dreams that fit my limitaion untill I have the energy to fullfill it all the way,learned to be patient,I had the chance to go back to school and passed with a 4.0 and top of the class( that was a no brainer because I went to school to be a et nurse lol!)I did get to fall in love and learned that my heart could be broken and I would be ok...twice, had a dangerous pregnancy but it turned out to be blessed with a beautiful daughter,who does not have crohns,got to homeschool her to make up from the seperation when I was sick,so lucky to have a family that supports me,fell in love , The need to love and to be loved,gained back a differant kind of confidence,I had to make differant plans for my life...better! I now have the ability to look at someone and always find the good in them, most of all I learned patience and acceptance and now wanting to live my life and not want to die!I now have a better and differant relationtionship that are more postitive! I joined www.meetanostomate.org
There still so much more to grow and to learn. We could all sit here all day and answer this one, but be honest and tell us "Just what your thinking"............Please no judgements ...untill you have been in the other peoples shoes you dont know what they went though. Even if we have similar stories there unique as each of our stomas are!
1.What has your disease taken away from you?
....examples would be..they took a body parts from me and I left with this bag, I am mad because I had big plans when I was young and I was unable to fullfill my dreams,I didnt get to go to school like normal kids because I had tutor in the hospital,hard to make friends,hard to tell friends what I have because i'm embarrassed,taking my teenage years away from me,Made my parents and family worry,not keeping a boyfriend,not getting married ,not having children, not falling in love, having children and it leaves your body unable to care for that child,letting other people help raise her because I was so sick,having a family that thinks they know it all,tired of people nagging me about my weight or diet or how to take care of myself and disease,mad because I dont look sick...people dont believe i'm sick,mad because my care faild..twice,mad because I lost my marriage because of my selfishness,Having to miss family events,lost myfelf in addiction and depression,I cry because I see the disapointment in my childs eyes when I say "not now... mommy doesnt feel well tonight,or I fall asleep first so I dont have to be intament with my partner, I hate how it made me feel to have this ugly appliance on me,not sexy anymore,unloved, They took my confidence they day they gave me the ostomy,took my life away from me I had so many plans! These are someof the emotions that I remember going though for the last 26 years of dealling with this disease... They always seemed to always be negative..and with that negativaty I lost so much in my life untill one day years and years had gone by......I asked a differant question!
2.What has your disease given back to you ?
....examples would be..I lived because of the ostomy bag, I just needed to make dreams that fit my limitaion untill I have the energy to fullfill it all the way,learned to be patient,I had the chance to go back to school and passed with a 4.0 and top of the class( that was a no brainer because I went to school to be a et nurse lol!)I did get to fall in love and learned that my heart could be broken and I would be ok...twice, had a dangerous pregnancy but it turned out to be blessed with a beautiful daughter,who does not have crohns,got to homeschool her to make up from the seperation when I was sick,so lucky to have a family that supports me,fell in love , The need to love and to be loved,gained back a differant kind of confidence,I had to make differant plans for my life...better! I now have the ability to look at someone and always find the good in them, most of all I learned patience and acceptance and now wanting to live my life and not want to die!I now have a better and differant relationtionship that are more postitive! I joined www.meetanostomate.org
There still so much more to grow and to learn. We could all sit here all day and answer this one, but be honest and tell us "Just what your thinking"............Please no judgements ...untill you have been in the other peoples shoes you dont know what they went though. Even if we have similar stories there unique as each of our stomas are!