Hello all my dears. This is for the first time I'm posting in this group. I delivered a baby in 2019. After just 3 months, I was diagnosed with CA colon and severe pancolitis. I woke up from surgery, and they did a right hemicolectomy and wanted me to manage the rest of my colon with meds. But post-surgery recovery was a nightmare. 12 rounds of chemo and trying every med to control my diseased colon. Steroids took me over, Imuran, biologics, and what not. I couldn't recognize myself in the mirror. Just after 1 year, I had a relapse and was now stage 4 with metastasis to the ovary. Again went through surgery laparotomy to remove the tumor. I begged doctors before surgery to take my colon out as I had more side effects and suffering from ulcerative colitis than the cancer itself. But when I again woke up from surgery, they took the ovary out but my colon was there. I got furious and frustrated. Surgeons said your colon doesn't look too bad. It can be managed by meds. Which again followed by more chemo. Due to chemo side effects, particularly diarrhea, I quit it and decided I would die if I continued this way. I consulted a naturopath/steroid but again the same suffering. My colonoscopy shows ulcers, etc. but not that aggressive. But I'm steroid dependent and the doctor wants me to again try different biologics. I'm lost and don't know what to do. I'm afraid of recurrence. But for sure ileostomy surgery does cross my mind. Kindly advise me. What should I do? Should I again force my doctors for surgery or should I continue trying meds?
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Ostomy surgery is stressful both for the patient and the caregiver, and creates a major life change for both people in a relationship.
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Learn how to care for your loved one, while still taking care of yourself.