I have no spleen, colitis, and pelvic floor issues. Going to the bathroom is painful every day. My colitis is under control. I have lived on laxatives every day for years, and my rectum is shot, slow colon nerve damage, prolapsing internal hemorrhoids. I honestly am not able to find a doc willing to give me an ileostomy because they think I am too high risk because I have no spleen and am immunocompromised. I lost my spleen due to an anal manometry test where the clips were placed too close to my splenic flexure, and my spleen was ruptured. I can't get hemorrhoid surgery due to being immunocompromised and proctitis/colitis.
I live in MA, and yet with all the hospitals, I can't find a surgeon. Mass General pelvic floor dept. was useless. HAS ANYONE HERE, WITH NO SPLEEN, HAD ILEOSTOMY SURGERY? My issues are really from pelvic floor issues and now a slow colon. I did get an opinion from Cleveland Clinic who suggested I move there for a year for multiple stepwise surgeries, but I can't move there and live there for a year. I am 70 and on my own. Hoping to hear if some asplenia patient on this website had ileostomy surgery, and if so, where, by whom, and how it went.