Acid Reflux and Ulcerative Colitis: Seeking Advice and Shared Experiences

Replies
10
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194
ChrisP
Feb 28, 2024 12:47 pm

Good afternoon from France. I have a colostomy and ulcerative colitis. For some time, I've suffered a persistent cough that has been traced down to acid reflux, but we are struggling to control this.

An 'end-to-end' endoscopy (not a fun day out!) last autumn revealed no nasty stomach problems, but a weak 'non-return valve' allowing acid to track up and irritate, leading to mucus production and cough. The lower throat tissue appeared healthy but irritated. My excellent GP, working with the specialist, has changed me from omeprazole to pantoprazole (worse!) to esomeprazole (better!), accompanying this with Gaviscon liquid (yuck) and a cough suppressant, both to use as needed, aiming to break the cycle of tickling cough provoking reflux provoking more coughing. We are trying everything to settle it, but it feels like searching for a needle in a haystack. It isn't terrible, but it isn't great either, and I am fed up with disturbed nights. Having read about possible surgical interventions, we are not there yet—and I'd rather avoid this.

I have banished onions, eaten more slowly, not eaten or drunk after 6 pm, raised my head in bed, checked all my meds for possible side effects...

Asking Dr. Google whether there is any connection between UC (mine is slightly grumpy at the moment) and acid reflux, opinions seem about equally divided. I know I have to lose weight (overweight but not insanely), but that is a longer-term project. Anybody out there had similar problems, please? I'm very fed up with this and will welcome your thoughts and ideas. Thank you.

Morning glory
Feb 28, 2024 12:57 pm

Hi Chris, before I had my ileostomy, I had terrible reflux. I took meds for it too. I have had my ileostomy since 1987 and very rarely have reflux unless I eat a doughnut. I think there might be a link but haven't had it confirmed.

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Beth22
Feb 28, 2024 1:27 pm

Hi there,

I have GERD (acid reflux). I have had it since I was 19 years old. Tips: one, find an antacid that works well for you. Protonix works the best for me; make sure to take it at the same time every day. Cut out acidic sauces, drinks, and fried greasy foods. They are all triggers and will aggravate it and cause it to be worse.

ChrisP
Feb 28, 2024 6:00 pm
Reply to Beth22

Thank you, Beth.

Acidic sauces/drinks? Don't touch them. Fried greasy foods? Almost nothing.

Likewise, avoiding onions, sadly...

Beth22
Feb 29, 2024 3:13 am
Reply to ChrisP

I miss onions. You can just about add it to anything, and it adds yumminess.

Yeah, avoiding acidic drinks ends up cutting a lot out, like orange juice, cranberry juice, and grape juice. They will cause a lot of acid. There are two things I didn't give up: coffee and chocolate lol.

 
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ChrisP
Feb 29, 2024 7:20 pm
Reply to Beth22

Agreed! A couple of weeks ago, on top of it all, I developed a UTI. Recommended remedy? Cranberry juice!

Funnily enough, it didn't make it worse...

Not adding acid to an acid problem makes sense - so why do many 'folk remedies' swear by apple cider vinegar?

Beth22
Feb 29, 2024 8:59 pm
Reply to ChrisP

Oh, the apple cider vinegar does not do!! It's a horrible lie!! Oh gosh, I was told about that shortly after they found the GERD and oh my gosh, it was so bad, burned horribly, stomach on fire, and was coming back up in my throat.

xnine
Mar 02, 2024 5:21 pm

When I have an upset tummy, I use gripe water. It's good for babies and big babies too.

Beth22
Mar 03, 2024 1:24 am
Reply to xnine

Lol, ummm, you do realize that GERD isn't an upset tummy like that, right?

xnine
Mar 03, 2024 3:13 am

No

Beth22
Mar 03, 2024 4:01 pm
Reply to xnine

It's way different from an upset stomach.