Have neurogenic bladder for 3 years. Intermittent catheterization caused too many infections and pain. Now have suprapubic catheter for 6 plus years. Suprapubic catheter is now causing constant bladder spasms and infections, despite bladder medications and several rounds of Botox. Saw new urologist, he is suggesting radical cystectomy with ileal conduit. He said the infections are messing up my kidneys and can cause them to fail. I'm at my wits' end and scared. Botox several different times, anti-spasm medications (oxybutynin, Detrol, Myrbetriq) all cause constipation. Urologist says, "You need to take care of your kidneys." I also am diabetic type 2.
Why Join MeetAnOstoMate?
First off, this is a pretty cool site with 33,890 members. Get inside and you will see.
It's not all about ostomy. Everything is being discussed.
Many come here for advice or to give advice 🗣, others have found good friends 🤗, and there are also those who have found love 💓. Most of all, people are honest and truly care.
Privacy is very important - the website has many features that are only visible to members.
Create an account and you will be amazed.
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Hollister
We conducted a survey to better understand the impact that living with an ostomy has on sleep.
Learn the results of our ostomy sleep survey.
Learn the results of our ostomy sleep survey.
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Hollister
Talking about having an ostomy can be uncomfortable for most people. Still, it's something you can't always avoid.
Learn about some strategies that can make it easier to talk about your stoma.
Learn about some strategies that can make it easier to talk about your stoma.