Loss of taste anyone? Taste buds shot

hoping to get some insight bc many of us have been on meds and my g.i. surgeon thinks its from the many biological drugs used to treat arthritis. ( RA) " fall out" .  i doubt that. 

i have not seen any topics on lost of taste related to ibd.. or surgery . or meds here. so am i the first?

i stopped those meds in Aug. 2023 this year.

recently had ken butt  5 weeks ago. ( Oct 9)  and taste loss is worse. 

 

im writing this at bedside in hospital cause i was admitted for low blood pressure due to dehydration.

bp was 90/50. . i am now 120/80

back to normal. 

 

so how can u stay full fed and hydrated when drinks taste like ?? toilet water?? ( best guess). and food = cardboard?

 

 

 

 

Franks hot sauce on everything. 

I've had a lot surgery over the last 30 years or so, after surgery for a few months most things taste disgusting to me bread been the worse one of all I've just got used to forcing myself to eat...I have FAP so nothing to do with  IBD in my case.

During my 3 month hospital stay, I had a problem with my tongue that no one could really explain. Mostly because they were too busy trying to save my life and I was too doped up to make a big deal of it. It was like my taste buds had detached from my tongue and were rolling off. I know that wasn't actually the problem. But, it plagued me for a couple of weeks or more. I kept having to wash my tongue with a solution they had in ICU. The sum result was the loss of taste buds at the tip of my tongue. It has left me with the permanent sensation of a scalded tongue at the tip to the point I have to be careful with hot food and beverages. It has got a bit better over time. But, I keep forgetting to bring it up with my GP. Early onset senility, I guess. Well, maybe not early... :-))

Daniel

Hiya warrior have you got oral thrush ? This can have same symptoms just a thought 🤔 xx

Getting Support in the Ostomy Community with LeeAnne Hayden | Hollister

Hello, You're not alone!  I had to force myself to eat and drink after surgery.  For a few months things just did not taste good or tasted like cardboard as you said.  I drank Ensure shakes each day for quite a while, and had a piece of cheesecake which was the only thing that tasted good and had lots of calories - other things I just forced.  Finally got better for me, but I did have an incident a few months after surgery where I passed out in public and had to go back to the hospital for a bit.  So do make sure you stay hydrated even if you have to force it...others suggested Gatorade Fit or Liquid IV packets added to water for electrolytes.  I really hope you feel better soon !!  

You gotta force yourself to eat.  I found pineapple juice worked to help me swallow food bites.  Sip lots of water and an electrolyte beverage.  Like DexieB, I passed out because of dehydration.  It is the weirdest thing to not want food.  My wife used to beg me to eat, but I just couldn't do it.

isn't it amazing the stuff we go through thinking " im alone in this.. im going nuts.". and here the few.. the best.. say no.. im here too.

thanks everyone. i got discharged  after four liters of saline and one over night stay. 

incredible replies. amazing people with tactics or ideas to cope and watch out for.

i will reach out individually you. im exhausted. thank you.

a little bit of warriors in us all.

Warrior.

Hey Warrior,

Hang in there.  Last year I lost 64 pounds before my colostomy surgery.  That was when my wife was begging me to eat.  Then when I was in the hospital, I wasn't allowed any food or water for 3 weeks.  Just ice chips and moistened lollipop looking sponge things.  Got everything thru the 2 IV's and PICT line.

I'll never forget when I was allowed to drink hot chicken broth after surgery.  I spent about 10 minutes telling my wife and the nurses how wonderful it was.

It takes time and is hard.  But remain determined to recover.  

 

Try tomato juice or clamato, I craved it after my surgery. I would drink v8 once in a great while before surgery but like it a lot more since. I didn't lose sense of taste but was dulled for a bit and I was craving stronger flavors maybe.

Hi all, like Bob48, V-8 was the only juice that I could taste for a couple of weeks after the resection surgery I had a few years ago. The chicken broth just tasted salty, and when my stoma woke up, the nurses would recommend whatever was the special of the day from the cafeteria, but I would only get jello and broth, and pretty much the same when I got home.

G-Day Daniel,  You have just got my brain working. For about 1 year I have had this feeling at the tip of my tongue as if i have burnt it on hot food. I never related it to after getting a Stoma but it looks like its a real thing. We might have hit on something here.  Can we all make a comment if you have this sensation.  Regards IGGIE

Hi IGGIE. After doing a little research, I think that the suggestion of oral thrush by Caz67 may be what I experienced. The most likely culprit may have been all the antibiotics I was on. The examples I have seen pretty much describe what I had. It was like my taste buds got up and decided to roll off my tongue. I never got a diagnosis when in ICU and I keep forgetting to bring it up with my GP. Next time, for sure. I have to be mindful when drinking hot liquids.

Daniel

Good morning all!! Original poster Warrior here..

I just wanted to follow up on the loss of taste situation that I'm having, trying to find an answer to the question  why I have lost my sense of taste in my mouth??

 

I've spoken to the dentist and apparently she doesn't feel it's the partial denture..the upper partial denture... I've seen an ENT specialist she can't find anything wrong inside the mouth..

I'm still waiting for an appointment for blood work through my primary care but as it stands today the most common causes are covid and a cold,both of which I do not have..

so in my quest to find an answer,I will report later but it's interesting to know that the dentist threw out the idea that it could be the partial denture..  the problem is Google!! 

 if you Google "what medications cause loss of taste" and if you Google "do dentures result in loss of taste" you will find a lot of information that may support an answer to why you lose your taste.

one significant thing they mentioned was age.. as you age your taste buds die off.. another was covid as mentioned earlier .

as I did more research, I found that that a partial denture could also result in the loss of taste and as you look up articles you can get 5 articles agreeing to this fact and five articles not agreeing to it so I think it's a cause of Common Sense and also what you honestly feel the problem might be..

so on that note, I'm thinking I have a situation with the Denture which is known to cause loss of taste because basically you're covering i the roof of the mouth which has your palate and believe it or not  taste buds..   so if you're covering it don't you think you'll have a sensation of loss of taste ??  I also found out Methtrexate will also cause a loss of taste as well as long-term use of steroids and in this case prednisone.  I still haven't found a concrete answer..

I don't know if I ever will but I just wanted to update that you guys know I'm still working on the original Thread about loss of taste what caused this and I'm having problems accepting the fact that it could be old age and it's not covid..

I aay horse feathers!!

and I'm leaning more towards the fact of the Denture and long-term use of prednisone and possibly vitamin deficiency are the culprits.

this my case. my thing.

noting over 300 views so far, I am tempted to say others out here might be experiencing something similar but are too shy to comment. 

don' t get caught watching the paint dry.

 

blood work has arrived.

no vitamin deficiency found.leaning towards long term use of prednisone " fall out" as the culprit.

eating food is no longer enjoyable.

as weight sheds, i certainly am glad im at the desired weight i should be at 5'11".. and equally glad there is an appetite. 

keeping up on fluids..juices.. fruits is helpful. but dammit..where's the meat? 😋

 

Beautiful Day, Warrior!

Might not be the Prednisone, I 've been eating that nasty drug since 1987 for a kidney transplant, n