Hi everyone dont know if im doing this in the right place but here goes, got some news and a few question's, let me explain first....I have a loop colostomy (since may 2010) recently i have had lots of problems with it. Leaking lots and often from my bottom, going to the toilet in the "normal" way, pain etc etc.
From the start i kind of knew to expect some mucous from the back passage because of the type of colostomy i have but wasnt prepared for this. For the past few months i have been leaking feacal fluid daily - passing stool and even having normalish sized bowel movements all due to overflow of the loop. Instead of all the feaces coming out into the bag some of it has been bypassing it and running into the other loop that leads to my rear end!
This has been especially awful for me as my colostomy was created to rest my rectum and perinneum due to an unhealed wound. I been wearing pads-inco nappy type things you name it to try and avoid messy acccidents. It has caused me problems with my wound, nappy rash and infections etc.
Was told to it may settle/was because of type of output/was due to infection etc then was told to try suppositories up the way because some of it was getting blocked and then to try through the stoma-however that was not sucsessful as nurse told me my bowel is now sort of twisted, great eh?
As you can imagine this situation was really gettin me down i mean after all what is the point in getting a stoma and still spending half your life sitting on the toilet?
Suggestions were made that maybe my rectum could be removed but i felt that at 22 and with no crohns etc that was really not the right route for me at this stage so i got another appointment with my surgeon on monday there.......Turns out there IS A SOLUTION!!!!
I can have quite simple surgery to staple or stitch CLOSED the part that still leads to my rectum, that is causing all the problems!
If my rectal wound heals in the future i will still be able to have a reversal done as the stitches or staples can be removed and the bowel joined back together. In the meantime it should bring an end to my misery.
I have to go for a pre assesment on the 30th march and hopefully operated on the 7th April.
I know from messaging, reading and replying to a few posts that there are people out there with similar problems. Please get it cheked out, don't put up with it, it is awful living this way! I am frustrated that i put up with it thinking at first that it was normal and then getting problems after problems and ending up like this.
So questions. Does this make sense to anyone? Has anyone out there had the same surgery to fix the problem? Anyone have any advice? Was anyone told that this is a possibe problem with loop ostomy surgery?
On a lighter note, I asked the surgeon for a refund......for all the toilet roll i should not have had to buy over these past months! lol. He just laughed, must think im crazy. But as they say, if you dont laugh you will cry.
Any comments etc would be appriciated, Thanks Pami xxx
From the start i kind of knew to expect some mucous from the back passage because of the type of colostomy i have but wasnt prepared for this. For the past few months i have been leaking feacal fluid daily - passing stool and even having normalish sized bowel movements all due to overflow of the loop. Instead of all the feaces coming out into the bag some of it has been bypassing it and running into the other loop that leads to my rear end!
This has been especially awful for me as my colostomy was created to rest my rectum and perinneum due to an unhealed wound. I been wearing pads-inco nappy type things you name it to try and avoid messy acccidents. It has caused me problems with my wound, nappy rash and infections etc.
Was told to it may settle/was because of type of output/was due to infection etc then was told to try suppositories up the way because some of it was getting blocked and then to try through the stoma-however that was not sucsessful as nurse told me my bowel is now sort of twisted, great eh?
As you can imagine this situation was really gettin me down i mean after all what is the point in getting a stoma and still spending half your life sitting on the toilet?
Suggestions were made that maybe my rectum could be removed but i felt that at 22 and with no crohns etc that was really not the right route for me at this stage so i got another appointment with my surgeon on monday there.......Turns out there IS A SOLUTION!!!!
I can have quite simple surgery to staple or stitch CLOSED the part that still leads to my rectum, that is causing all the problems!
If my rectal wound heals in the future i will still be able to have a reversal done as the stitches or staples can be removed and the bowel joined back together. In the meantime it should bring an end to my misery.
I have to go for a pre assesment on the 30th march and hopefully operated on the 7th April.
I know from messaging, reading and replying to a few posts that there are people out there with similar problems. Please get it cheked out, don't put up with it, it is awful living this way! I am frustrated that i put up with it thinking at first that it was normal and then getting problems after problems and ending up like this.
So questions. Does this make sense to anyone? Has anyone out there had the same surgery to fix the problem? Anyone have any advice? Was anyone told that this is a possibe problem with loop ostomy surgery?
On a lighter note, I asked the surgeon for a refund......for all the toilet roll i should not have had to buy over these past months! lol. He just laughed, must think im crazy. But as they say, if you dont laugh you will cry.
Any comments etc would be appriciated, Thanks Pami xxx
