Constipated with an ileostomy!

Since Christmas, if not before, (my
last hospital visit for this was Sept 2009, when the ileo malfunctions and
faeces passes through my colon and out of my backside, vagina and fistula) I
have had a very lumpy colon, full of faeces (which I can feel easily as my
parastomal hernia is so large). I am unable to take anything orally as it would
just come through the ileo, or rectally as it would just come through my
fistula and vagina ..... but surely,
this can't be good for me - is this not creating loads of toxins in my body
which I am unable to expel?



Over this period of time, I have had a terrible taste in
my mouth, thought to be gastric reflux, (several meds have had no effect) bad
nausea up until mid March and the most debilitating fatigue.I think
that I am now beyond the sphere of my GP, who bless him, just shakes his head
and pats my knee!



Needed some medication and my GP is away, so Tuesday last
week, I saw the locum GP - he suggested
that I put a glycerine suppository into the stoma where the loop had been
created, I wasn't even sure that there was a real hole, but did manage to do
this that evening.



On Friday, I went back to see him to report that the earth
hadn't moved, so back to square one!



I am off for a weekend away, the Fibromyalgia Association UK
are having a conference and pamper weekend - it will be my only little holiday
this year as I am not sure when surgery will be etc etc. I am being very brave by going alone, so I
hope that there will be others in the same situation there. Will report back
afterwards!

Hello
Wondering if you're still around. I read a post you made regarding the malfunctioning colostomy.

I am having the same issue. I had surgery this January. I am in severe pain and pass fresh feces through my rectum. I've , of course have told my surgeon many times. I've had a cat scan and it showed nothing. I have very severe rectal pain. Did you ever get your problem resolved?

Hi, Yes I am still 'around' although haven't been on the site for many years!

Mine was solved eventually, my fistula was repaired and I chose afterwards to have a permanent colostomy, so I no longer ge the fresh stuff in my rectum - although as the bowel still produces mucous, I do have a mucous plug which I do need to pass and I have been trying now for 3 and a half years!! Just uncomfortable though when I get the urge to 'go'!

I am assuming that yours is a loop colostomy and that is why it is bypassing as it is going down the hole from the loop - can't see why he cannot understand that? Maybe go get a second opinion? Are you in the UK?

Rachel x

Thank you so much for your reply. It confirmed my suspicion. I have come to the same conclusion and tested the theory by blocking the fistula with colostomy barrier paste this week. And sure enough, no feces came out of the rectum. I still have severe lower bowel digestive pain in the evening, but at least the Scary Poop Syndrome has been solved.

I have described the issue to the surgeon a million times. First, he told us it was normal soon after surgery. But it continued to get worse. Then he sent me to get a ct scan. He thought it might be an abscess or the tumor (that they weren't able to remove) was growing. The ct scan showed none of these scenarios. However, it did show two small obstructions in the small intestine. That was over a month ago.

Now the surgeon won't return my calls. Im furious.

I'm in the U.S.A.

I am on Facebook.