Seeking Advice on Ostomy Appliances for Better Flexibility and Seal

Replies
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93
Shamrock
Nov 13, 2024 4:00 pm

I'm open to suggestions.

I'm currently using Coloplast Sensura Mio convex with no sting paste, barrier strips and a four hook ostomy belt which I find much more secure. The quality of their products seem excellent.

However their convex bubble may be too stiff and not flexing enough which when I sit or drive, tends to pop the wafer bubble off and leak. Especially at the bottom edge of the stoma.

So I'm looking for solutions and something that will bond well to the skin around the stoma to protect it from output very well (not weak like skin protectant) then put paste or ring on top and marry to a more flexible wafer, perhaps the new flexible convex from Hollister? I can get past my allergic reaction to their adhesive if necessary by using a protective sheet first.

Or something else entirely? 

I'm aiming for 5-7 day average bag wear times with flexibility of movement.

I want my life back. Not chained inside all the time.

Your thoughts?

Beth22
Nov 13, 2024 9:15 pm

Didn't you just post this a couple of days ago? As I mentioned last time, if you have a roll or fold, the convex isn't going to go around it and stay put the way it should. As I am sure you can tell, our options are limited when it comes to these things; we have flat and convex... those are the options: paste or barrier ring. For the skin, as I suggested, use liquid skin protectant like Marathon or 3M, and no, it's never too early to use it if your skin needs it. Have you tried using a flat 1-piece wafer? I have experience and noticed with 2-piece and having a roll or crease doesn't manage too well. And I would stop using conditioner around the stoma; it compromises your seal. May I ask why you changed inside? I have to change every other day, and it takes me anywhere from 2-4 hours for a bag change; talk about frustrating. I don't have a quiet time; I've tried every time of the day, literally; it doesn't matter what I do, that's just the way mine is... my stoma likes the air and freedom, lol.

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Shamrock
Nov 14, 2024 3:22 am
Reply to Beth22

I went with a straight no conditioner, just a little antibacterial soap and no-sting paste. No skin protectant. It's holding fine, even went out driving, etc.

But I noticed my convex was one of the rare ones that is very flexible. I checked the others and they are stiff. Don't know what to think.

I think I may also have been overdoing things because while on coffee my output was very acidic due to the body just flushing out the stomach, so it necessitated me to go overboard.

With my granuloma also shrunk to nothing, I'm back to a regular bag process without many additions. I don't have my belt on so snug anymore either.

 

I'm asking if there is anything better for near flush stomas with a belly fold.

Something perhaps that can adhere to skin well around the stoma and is flexible, to protect it and cause wafer and paste shearing to occur on top so output doesn't burn the skin around the stoma. Something thicker than skin protectant. Like the thickness of a ring.

I already know well about those products, Medline Marathon and 3M's Calivon. Unnecessary for my current needs. I'm not bleeding and skin protectant could have been my problem as it wasn't binding well to the skin as well as my no-sting paste does.

 

 

Beth22
Nov 14, 2024 4:27 am
Reply to Shamrock

That's what this skin protectant is made for, and your bag will stick to it. It's designed that way to protect the skin from output so it doesn't burn your skin. It's way different than the powder method, which I don't think works at all; it never did for me. It goes directly on the skin, so you can use a ring over it. As far as anything else goes, our options are rings and paste. If your skin is getting burned, then you need to either change your bag system or your stoma is too low, and you need a revision if nothing else is working.

Shamrock
Nov 14, 2024 4:38 am
Reply to Beth22

Skin protectant works for only a short time. Powders do suck though, never could get it to work despite putting on an invisible coat. Powders do have to be covered with skin protectant though. Maybe that's where it's failing.

I was thinking more like a hardening cream or something that I could spread around the stoma, allowing it to dry to a flexible covering, then paste and wafer on top of that. It wouldn't come off unless used adhesive remover and some force, much like a protective sheet can really stick hard to the skin sometimes. Even possibly reuse it between wafer changes.

 

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Beth22
Nov 14, 2024 2:31 pm
Reply to Shamrock

Pretty much the hardest I have found is the liquid skin protectant. I'm not talking about these little wipes we are given; I sent you pics already. It comes in a wand with a sponge head, and you have to shake it and crack the tube like a glow stick. You put it on the skin around the stoma, wait about a minute until it dries, and then put your paste or ring and then wafer. And nothing should be reused around the stoma; that's an infection waiting to happen. I know they used to make a liquid adhesive; I'm sure it's still around, but I haven't tried it. Maybe others on here have used it.

What exactly is going on with your system? Are you leaking, is your bag not sticking, or is it popping up? Is your skin around the stoma red and irritated? There are a lot of factors that go into the system, and one small thing could be throwing it off.

Shamrock
Nov 14, 2024 6:45 pm
Reply to Beth22

"...comes in a wand with a sponge."

Yeah, that's the better grade of the 3M Callivon for large areas, a better product than the average version. But it's total overkill as I only have small recurring burns just around the stoma. They heal up and then occur again when the stiff convex shears the paste off.

The skin protectant has actually been hindering my paste adhesion, so I've stopped using it.

The problem is the convex wafer, especially the bubble, not being as flexible as it can be.

I swear I get these unusually flexible convex wafers along with my regular stiff ones; they seem to work great and then back to a stiff one again.

I'm going to get Coloplast on the phone to see what's up.

Beth22
Nov 14, 2024 8:22 pm
Reply to Shamrock

No, it can be used right around your stoma. Trust me, I know; I used it for a while. Not sure where you're thinking otherwise, and yes, around the stoma, that's what it's meant for. And yes, if you're using powder, it can mess with the adhesive, and to me, it doesn't work; it didn't for me. I needed something better, stronger, and that would uphold when output touched it, which is why I brought up the 3M and the Marathon. And as I said before, if you are trying to use a convex with a roll, and have it wrap around that or a deep crease, it's not going to adhere properly. Which makes it frustrating that they don't make them more flexible. And if you have irritated skin, the wafer isn't going to adhere well either. They are flexible to a degree, but when you get into rolls and creases, not so much. And the reason for stiffness is so it applies pressure to the skin so your stoma pops out.