Stoma Pain and Irregular Activity: Seeking Advice

Hello,

I have an illeostomy and also subsequently a sugarbaker technique parastomal hernia repair.

A couple of months ago I notice a slight increase in pressure around the stoma and then 4 days ago I suddenly started experiencing a great deal of pressure and discomfort around my stoma and it started working quite iratically. When it was working it was very painful indeed. It felt raw. It hasn't ceased working for more than half a day but there do seem to be bigger gaps between activity than before. I've been on liquids ever since this started but the discomfort and pain hasn't eased off at all.

My wife has had a upset stomach and I was wondering if I got the same thing and perhaps the escess stomach acid has slightly damaged the intestine leading to the stoma.

Any ideas ...?

Thanks

John

Hi jonnyuk



just read your post, I have experienced something similar, it started a couple of weeks ago when I was rushed into hospital with what turned out to be a compacted bowel, I was only in overnight. I have a colostomy and had it over 2 years with no problems so this happened out of the blue and also was still having output although quite firm, I was kept on liquid for 24 hours and given some meds to move things along.

Came out next day still a bit tender but things moving. However I thought I could get back to normal but making sure I watched my diet, but since the episode and having the ducosate and tried movicol output has been very liquid and my stoma bleeds very easily and quite a lot. Also woke up two days ago with pain like stitch around the stoma area and feeling like pressure like I needed to pass a lot of wind but nothing would happened.

Have stopped the meds because to me the output is too loose and I worry that the pain is caused by the stoma bleeding or infection. Oh and I have a heavy cold as well so didn't know if this was having an effect as well. If things haven't settled by tomorrow will ring the oncology clinic and let them know what happening and get some advice.

If your worried and the pain isn't letting up you need to get seen to asap as with bowel problems bad things can happen really quick, with me I had a tummy ache at about 10pm and by 6am next morning I was being rushed by ambulance to A&E, prior to that no problem at all.

Good luck and speak to the experts



Trudel

Hi jonnyuk,



Hope that you are feeling much better by now.

Just want to agree with trudel ... those with ostomoties that experience that type of pain ... off the emerg!



Things can go downhill really quickly.



We all have the little cramps and odd feelings that we come to know ... but anything that makes you gasp or cringe repeatedly is something to take seriously. And since your output is irratic ... more reason to be concerned.



Let how know how you are doing.



All the best,

Beatrice

Hey jonnyuk, just now opened n saw your post. Could be acid output...notorious for skin breakdown. Is skin immediately around stoma discolored? In my case that indicated a hernia. Symptoms also included bulges in skin around area covered by wafer, purple,gray discoloration on bottom half of stoma. Went for check up with GI doc and it was a hernia: was repaired with mesh...no problems and that was 2008

Good luck...peace

Hi..

Thank you for your advice & kind wishes ...I just thought I'd update ..

I kept up the liquid intake and managed to get an appointment with my surgeon.He scheduled me for a CT Scan. I few days after meeting him, about 8 days afterit all started I suddenly found that the burning sensation eased a bit and thenkept getting better each day. I now have a date for the CT scan (this Thursday)but I'm going to cancel as I feel pretty much back to normal. I now chew myfood more, eat smaller portions and drink more. That was an experience I wantto try and avoid again if possible! On the bight side I lost 1/s a stone andI'm now at my idea weight. This seems to have helped with the pressure I'vebeen feeling around my hernia repair although it's a bit early to say.

Regards and I hope you are all ok ..

John

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