Hospital Recovery And Recurring Wafer Issues

gutenberg

Sep 09, 2009 5:07 pm

I know this is a mixed up question, but here goes: Around Xmas time I came down with pneumonia, I don't remember the event, guess I was pretty ill at the time. Anyway shortly after release from hospital I woke up having hallucinations and sweating profusely, I had a wine colored sheet wrapped around me and when the paramedics showed up I can still see my image on that sheet, thought of the Shroud of Turin, but I digress. Back in hospital my skin was still slippery, I was told I went into shock because of a potassium over/under? problem. Anyway it was quite a trip. And that's when the problems with the wafers falling off began, 6, 7, 8, times a day, I wouldn't leave the house for fear of looking down at my shoe and seeing wafer and pouch. "Hay, it ain't mine" probably wouldn't work. Sorry, I digress again. This problem lasted for about a month, kept the pharmacy happy, and finally went away.

Question finally: has anyone ever come across a problem like this.

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janice

Sep 09, 2009 11:25 pm

no i haven't and hope i never have to! sorry u had to go thru it.

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jenepooh

Sep 11, 2009 2:14 am

I've had issues at times early on in my relationship with an ostomy. The pouch and the flange just didn't seem to like me or each other for that matter. Do you use any paste around the area before applying the appliance?

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junopete

Sep 11, 2009 4:16 am

I have had kind of an on going potassium problem.  The problem is to much potassium.  On several occasions after a blood test i would get a call from the hospital saying come into emergency right away, your potassium is to high.  Also at the same time I was getting bad readings on my kidneys.  They would have me drink this almost carmel tasting stuff and give me 3 litres of salin IV, and I mean they would just dump it in.  A bag would go in, in under 10 minutes.  Another test an hour later I would be fine.  The idea was to flush me out.

The potassium problem seemed to be simply lack of fluids because I was loosing so  much fluid thru my ileostomy.  Once i got enough fliulds in me on a daily basis the potassium and kidney problems went away.

OK meanwhile while this was going I would get the sweats, once the potassium level was normal the sweats would stop.

I got very good with the wafer staying tight and no leaks or irritation around the stoma.  However once I strated to sweat all bets were off.  The wafer with Eakin seal might stay on for an hour at best, the sweat would just ruin the seal.

One more thing, most the manufactorers say it doesn't hurt to get the wafer wet from like swimming.  In my case, I found that not to be true at all.

Rick.....

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gutenberg

Sep 11, 2009 10:08 am

I really never expected such wonderful information, certainly never heard it from my doctor or the kidney specialist, maybe they knew but everything you said , I been there but without the answers. Damn I hope I can print out your answer, even down to getting the wafer wet, in the future I shall be asking for more tests, you know fix it before it gets broken.

Many, many thanks. Ed

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Hospital Recovery and Recurring Wafer Issues

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