Hi all,
I have had my ileostomy for 3 1/2 years and for the past year its condition has been deterioriating (i have crohns disease). It is 'collapsing' apparently. I know i have crohns disease in/around that area. When stuff comes out of it (in two places!!) its mostly noisy and uncomfortable. There is a patch of darkness right in the centre of it. I have been seen by my stoma therapist numerous times and have yet to be referred to a surgeon at all.
Just now, i was changing my bag and at the top part of the intestine - I watched it flush from pink, to really creamy white pale, back to pink again. I'm freaking out a lot, what should i do?? should i call my stoma therapist tomorrow??? Has this happened to anyone?