New to Ileostomy and Seeking Advice and Friends

Replies
34
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9937
LadyElf
Mar 23, 2016 10:46 pm

Hi, mine is Opec, but I made myself an ostomy bag cover, and also converted an old pair of stretch shorts to an ostomy cover with a pocket inside to cover the pouch.

Works quite well.

Eileen

jrryg8
May 31, 2016 6:18 pm

Well, relax, you're not alone. I had my operation in 2009 and I'm old and still kicking. My daughter helped me with my wafer and bag for the first 2 months and then I was able to do it myself. I now use the molded type of wafer and I have no leaks. That's the biggest concern of most people, what do you do when you're out and you have a mess to take care of, carry an extra wafer, bag, and clean underwear, and fix the problem, or sit in the house and feel sorry for yourself.

How do the British say it? Keep a stiff upper lip. If you have any questions, ask the doctor or ostomy nurse, or ask me.

jrryg8

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Hermit
Jun 25, 2016 12:35 pm

Had the same thing. Give your body time to heal. Good luck.

Earl
Apr 28, 2017 9:03 pm

Hi Zoe,

I was 15 when I found myself with an ileostomy and now I am 72.  I was able to return to high school, went to university found the love of my life...we have been married for 48 years.  We have a daughter (son-in-law) and two grandsons.  They lived in Nottingham until 2011 and now they live a mere 30 minute walk away.  Yes, it was difficult surgery to overcome and because the doctors didn't want to do the surgery I came close to dying of UC before they operated.  I was a jogger until a few years ago. Played racquet sports and I continue to golf. I don't believe that there isn't anything in life that I missed out on because I had an ileostomy.  In 1972 my wife and I went backpacking through Europe and the UK for 2 months.  A friend of mine living here in Vancouver climbed Mt. Everest and K2 with an ileostomy. Google Rob Hill and you can read about his inspirational story.

Best of luck and I hope my comments are of some help,

Earl

 

 

 

 

Mrs.A
Apr 30, 2017 6:05 pm

Hello to Zoe and all the newbies on this thread

Hope you are all finding your way around a bit better now. If you have specific questions we can help you out. We have a chat room as well that everyone who logs on to the site is automatically showing up in the chat although we are not always there if you post in the chat we will be notified with a small number down on the right where the chatroom is located.

 

 

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