Ileostomy Diet Resources for Non-Compliant Patients

Does anyone have a good website for printed Ileostomy diet? I have a non-compliant mother who won't eat correct foods and continues to get blockage/ileus. Would love to hand her something official.

Hi, this is quite a reasonable one - hope it helps a bit!



Rach xx



http://www.upmc.com/HealthAtoZ/patienteducation/Documents/OstomyNutrition.pdf

Rach, you always find the best sites and places, and you're one good trooper in helping us Ostomates. I wanted to personally say thank you. I don't know how to do a new post; I tried and messed up, so I hope you don't mind. My husband found a site in the US that gives ostomy supplies to the uninsured, and someone asked the other day, and he wasn't home, so I wrote it down. I hope I don't get in trouble. It is called Osto Group, and you can Google it or call 1-877-678-6690. Rach, plus there are more on Google where you pay very little depending on your income also. This is US only, as what I have found is people like me will donate their supplies we don't need anymore after our reversals; we don't have any worries about getting another ostomy once our surgery is complete. A lot of us didn't have colon problems, I am finding out, and people they say had diverticulitis only, and my doctor said I didn't even have that won't have to go back to an ostomy, but I will never forget the hell this put me and my family through. I missed the water slides and roller coasters last year, and I really promised God after I buried my daughter I would take my son all the time, but now that I learned about hernias, I am afraid. I ordered two NU Hope Hernia belts, and they are on back order, and I pray they come today. I met some of the coolest and kindest people on this site, and seeing this much caring makes me feel so good. In a way, I am sorry this happened, but in another way, I have made some of the best friends I have ever had on this website, and I am so protected and safe here. I am deeply sorry you have had to go through so much, and God be with you always and forever, and he knows how good and kind you are. So do I, by reading all the help you give other people, and your kindness is beyond me. I am in the US, and I know a lot of people who wouldn't give someone the time of day, and you help so many people, and I love that about you. I am sorry I got on your site to give the man who has no insurance the site to get his bags, the number to get them free, or call and get them cheap. My husband and I are like you and want to do all we can, and after I have been through this, I know how much it has been a burden on my own family. My husband really won't let me do anything until I get those hernia belts, as my surgery is closer every day, and I hope you all pray for me as I need those prayers, and I want to raise my youngest son, and I promised God I would. I have no idea when I can have plastic surgery on my tummy for sure until after this reversal. But I know one thing: Ostomates are very special and kind people, and I have nothing but genuine love for them. Now that I know how hard it was to become one, the first hospital didn't even show us how to put on a bag, so I had to go to an emergency room to get them changed until my psychiatrist put me in a better hospital where I got ostomy nurses and learned myself. God bless you, Rach, and I will stay on this site even after my surgery. I was once a good nurse and never knew how hard these bags were on patients. I worked with a doctor in geriatrics but only emergency at night in Atlanta, and I did all the lab work after all the blood was drawn. I miss being a nurse, but raising my youngest and being at home for him is so much more important to me, plus I can help people in other ways now thanks to you all. Take care of you, Rach. Love, Jenny. PS I can't ever leave my husband; he didn't sign those papers to hurt me, he thought he was helping, and I do know that. I've just been so depressed and confused, but I love him so much, and I want my family together.

Hi Jenny, thank you for your kind words .... glad you have got over your little bout of depression, I was sad when I read your post about leaving your husband - this surgery can hit really really hard on us all - especially  depending on how we all got here - for some its a life saver, for others it is down to someone else's, mistake, I will call it for want of a better word ... I have felt terribly down, unwell and lonely recently as I really do not think I am being heard by my docs - and look where that got me last time when they didn't listen .... here.... But, as you say, this site has meant a great deal to me - I have many friends here, some of who unfortunately are at the other side of the world, but are always there with a cheery comment or advice when I need it - I have every intention of one day being able to meet up with you guys - may need a substantial lottery win first, but I will make it happen eventually - UK first!



Take good care



Rach xx



PS to create a new post - go to FORUM HOME PAGE, click on subject ie ASK A QUESTION or LETS TALK, then click the NEW POST box at the top beside the subject title xx

Maybe your being a little too hard on her, I was told I could eat anything except popcorn after my ileostomy.  The key is to chew every thing really well.  How long has it been after her surgery?  I know I had problems with food boluses after my surgery no matter what I did.  These are very painful I can't imagene anyone who could prevent them wouldn't???

eddie

Staying Hydrated with an Ostomy with LeeAnne Hayden | Hollister

thanks jg for the info on  that for peopel with low income cause i know that ssdi doent pay much then after you get your ssdi you dont get any help with you medical supplies for about two years i know this cause i am one of those that is on the waitng list to get my medical lol and i would say if anyone that isnt in the us cant get ahold of thr company i am sure they can ask one of us over here to help them and send a care package to them

Just adding to what Eddie said....I was also told I could pretty much eat what I wanted as long as I chewed everything really well and drink lots of water when having anything on the "caution" list such as popcorn or nuts.



Blockages ARE very painful.  I had what we now call "The Tater Tot Incident" and...I'm here to tell ya'...OUCH!  Needless to say, tater tots are forbidden in my house now.

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Its important to know that sometimes its not the food or lack of chewing that does it..........There is such a thing as SCAR TISSUE.........as a result of many surgeries  scar tissue will cause blockages and there is nothing you can do about it.......so you must chew to lower the risk of blockages..I hope this too helps..Michael

When I left the hospital, I was given a document very much like the one Rach has given.



It's a great guide and starting place ... but as many have said, diet and ileostomy is a very individual thing.



For example, anything carbohydrate works fine for me (that includes pastries which is on the 'Avoid' list). French fries are great and have given me something to order when I'm out. Get this - plain cheese pizza (no onions or mushrooms in the sauce) goes down so good - I just chew each bite to mush.



Cheese works and cottage cheese, which I've always loved is a staple.



I haven't been able to make vegies work for me. Only well-cooked carrots and a little well-cooked cauliflower and broccoli (latter 2 give me almost instant zeppos). How I miss my big salads!



Fruit is limited to canned peaches and mandarin slices. Bananas and ripe pears no skin.



As far as meat goes ... chicken and a bit of ground beef is ok. Fish is fine (but odor!).



When you try new foods, make sure it's just a couple of bites chewed very well.



I used to eat a varied diet. The downside of what I can eat now is weight gain. Just too much carb/sugar content.



The most important thing to keep in mind is small bites, chewed very well -- no matter what you are eating.



Take care.

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  All right, guys, this my solution to the bolus problem--Montel's Healthmaster.  That's a whopper of a blender.  I loved raw stuff and when I got my ileu, had to stop eating raw fruits and vegetables.  That depressed me when nothing else did.  I found it on an infommerical.  I eat anything now--absolutely no problem.  Sure, you have to get use to drinking your raw stuff but once you get over the liquid state, it taste fine.  Any powerful blender will probably work but I love the Healthmaster--bet it would grind down rocks.  Give it a try.