Electrolytes

Has anyone else w/out a colon tried these? I wanted to have something that was easy on the go and I can't stand sweet hydration drinks. I had to put post it notes on them that said "Mom" so my kids wouldn't think they were candy
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I haven't tried these but I drink drip drop. They come in individual packets great for on the go and just mix it with a bottled water . There's also liquid IV .. same it's powder packets mixed with water.. I found for me the liquid IV came right out and was in my bag lol.. the drip drop doesn't though. Hopefully that helps

Thanks, Beth! Unfortunately, after surviving on Gatorade/similar drinks and lemon magnesium citrate (the nasty clear liquid stuff) for the last few months leading up to my surgery, I have a really difficult time drinking anything sweet. I think I was given samples of both of those from Girls with Guts (I think). I received a type that looks like a tablet (blanking on what they're called, I'll update this if I remember) but I thought maybe I could just suck on it like a candy or chew it up and swallow then drink plain water to trick myself into getting it in me quickly lol. I do use Buoy drops because they are taste-free, but sometimes if I have a migraine, I don't drink enough, so I was looking for quick ways to get some of those electrolytes in me.

Some of the flavors can be a little sweet. Gatorade upsets my stomach even diluted, so I can't drink it. Lol, yeah, that many citrate is no joke. I lived on that for years until it stopped working. Lol. As far as chewing for electrolytes, I don't know, but if you find out, let us know.

I asked when we were trying to plan a time for the surgery how long I had before the mag citrate stopped working and they said about a year from when I had started solely using that, so I was a couple months in at that point. I bought the mag citrate in bulk, pretty sure it's probably all the stuff they recalled. Ugh.

Stories of Living Life to the Fullest from Ostomy Advocates I Hollister

Drip Drop is $30 per 32 of them, about. I drink, or try at least four 16oz bottles of water, at least. That'd be around 120 for just electrolytes. Buoy is I think more affordable, $30 supply last a month, about. I'll try the Drip Drop because the Buoy has a taste to me, or I'm using too much, just started, we'll see, hopefully the Drip Drop will be sweet and tasty.

I can taste the Buoy a little but drink mainly water or unsweet tea. If I add lemon to regular water I don't notice it as much. I've been drinking a lot of club soda with fresh lime and adding Buoy and don't notice it with that.

Have a poke around this site, there is some reading and DIY info, it's more or less what I do.

https://drinklmnt.com/

Pretty sure I tried some of this at a children's birthday party over the summer :)

Ya mag. Citrate is sour .. that check pucker .. I moved on from that to milk of magnesia and other laxatives before I had gotten my bag they all stopped working or didn't work at all .. then they found what was wrong finally.

Just skimmed your bio. So what was your actual diagnosis?

Two issues actually... One my large intestine wasn't moving so they took the entire large intestine .. and I also have severe pelvic floor dysfunction which is why I have an ileo and.. had to have my rectum removed as well .. currently I still have my anus.

Do they know why your large intestine stopped ;moving? Asking b/c the same happened to me. Started getting sick in my early 20s, but they don't know what actually happened. They're thinking autoimmune and are seeing it run in families- but just females and it typically starts in early 20s. I've already talked to my bio daughter's pediatrician about when do we start keeping a closer eye on her? I don't want her to go through what I've gone through.

They don't .. I have had issues going to the bathroom since I was borneven breast feed I wouldn't go to the bathroom as a baby for days ..and at the age of like 4 my parents had to give me suppositories and mineral oil .as I got older it got worse then would be a week I wouldn't go then two weeks then 3 weeks I wouldn't go. All laxatives didn't work anymore.. they just as of 1-2 years ago figured out why. I did find out like 8 months ago a great aunt in my family ended up having an ostomy don't know why though.

Did they do an autoimmune disease test? The good thing about you going through it is you know the signs , so if your daughter starts to go through it you know what to look for .

I really don't know what tests they haven't done lol. My GI care is all at Cleveland Clinic now, but I signed releases saying they can use anything from me for research. I know they were sharing all my results with Mayo Clinic so they're aware this is happening, and in this form just to women. I'm hoping if there is a genetic component they've got 10-13 years to figure it out if my bio daughter follows after me. I know the motility Dr said he wished he'd been able to use immunotherapy treatments for me but by the point I got to him my colon prob hadn't moved at all in 3 years? It was pretty done

Check out H2ORS on their web site or Amazon. Living in Florida , it's my go to for rehydration when beaching / boating, outdoor activities. Enjoy .

So does your doctor think it was an autoimmune disease that caused it ? Did you see a genetics doctor?

Do you say Buoy out loud when you squeeze it into your drink? I've found this to be helpful in not overdoing it

I believe the hypothesis is something (the don't know factor) triggered an autoimmune response... the motility Dr called the intestines innocent bystanders that get attacked by the body itself (autoimmune factor) which was originally triggered by viruses, infections etc. One Dr I spoke with thinks genomics plays a larger role, but he wasn't part of my medical team trying to figure this out.

Yes, I did see genetics but to be tested for ehlers danlos only. I'm hyper mobile hence a shoulder reconstruction and knee surgery and I told her when she was doing measurements I had 6 anchors in my left shoulder so how she was measuring wouldn't be accurate but ‍. I think I met 3/5 criteria for that but my mobility GI Dr thinks me (and both bio kids) being hyper-mobile is all part of it.

Sounds like it . .. it can effect the organs as well, but I would consider that a possibility of being why your large intestine did that and also I would contact the one doctor that was on the track of his thinking (the one that wasn't apart of the team) sounds like he has ideas.

I should know after some biopsies are done by a general GI then pending those if he wants to do a smart pill study if I'm getting passed back to the gi motility team

ZippFizz is a powdered supplement that I have used. I believe that my lovely bride has purchased it at Sam's Club. I seem to recall that it's also available on line, perhaps that place that has the same name as that river in Brazil (in case we're not allowed to say the actual name!). I don't remember whether it's available at Wally World. But if Sam's Club made it without a problem, I don't know why amazon would be a problem. But the stuff is called Zip Fizz so Dr Google should be able to help you.

They did an echocardiogram of my heart to rule out the vascular form I believe. I know that wanted to make sure my heart was good to go before the colectomy.

I like Ultima grape zero sugar I get from Amazon

Hi Beth - I've been using Drip Drop for several years now. I order in bulk, and it's about 120/mo. It's all I drink. I got the larger packets and drink 3 - 24 oz bottles per day. Use less sticks than recommended but it's fine! I couldn't get unflavored water down, nor could I tolerate Gatorade due to the sweetness. Drip Drop is my answer!

I also use drip drops with zero sugar. When I was a mad cycler - I would fill my bottles with 1/4 of orange, 1 teaspoon of salt and water.

Hi, I understand not wanting sweet drinks, but Glucose is helpful for the absorption of Sodium in the upper part of the digestive tract, which is why I was advised to take these kinds of drinks. I was prescribed 'St Mark's mix' from my hospital butI now use a rehydration tablet based on WHO research as it is more convenient. I only use these when I feel I may be too "loose" and passing too much fluid in the bag -yuk :(. Rightly or wrongly I take water throughout the day as dilute fruit juice, coconut water (has minerals in it) and V8 vegetable juice. Plus we take in water in the food we eat of course.

I saw in Big lots they have a rehydration product - didn't see the cost- by the flavored on the go water section

I make my own on the go packets of sugar and salt and one of the flavored packs mixed in for 2 liter bottle I keep at work and for a 16oz bottle.

I am literally fearful of drinking plain water. Many options out there, you may need ;to experiment till you find one that your body is ok with- let us know what works

I have only used gator aide. Low sugar.