Living With Both Ileostomy And Ileal Conduit: Seeking Advice

Big H

Jan 12, 2012 3:44 am

I have an ileostomy since I was 18. Now at 72 I have been newly diagnosed with bladder cancer which quite possibly will result in radical surgery...the removal of my bladder and reconstructive surgery after proscribed Chemotherapy.

The end result may be an ileal conduit or urostomy.

I would welcome talking with an OstoMate who has both.

Hal

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ilsn2u

Jan 17, 2012 2:27 am

I don't have...but I have met people at ostomy support groups who do have both, and they seem to do quite well...as well as anyone with one ostomy. Good luck!

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Big H

Jan 17, 2012 3:06 am

Thanks for responding. I would like to talk to one or two people who have both an ileostomy and a ileal conduit.

H

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Generall

Jan 17, 2012 8:40 pm

I got an illeostomy in 1997 and due to damage from radiation I got a urostomy in 1999. I've had both ever since.

While it doubles the chance of leakage it was the only option that allowed me to keep working.

I'll be glad to answer any questions I can.

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Living with Both Ileostomy and Ileal Conduit: Seeking Advice

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