Experiences with Urostomy Takedown Surgery

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14570
uroman
Aug 20, 2010 11:31 am
Looking for anyone who has had a urostomy take down.  Just want info on what to expect.  The reason for my take down to continent urostomy is simpley to get rid of the bag.  I have had no other issues for the past 27 years.



thanks for any information,

uroman
Patches
Aug 22, 2010 10:27 pm
Do you mean a reversal?
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uroman
Aug 23, 2010 11:02 am
Yes, well going from incontinent to continent urostomy.
Miss Scarlet
Aug 23, 2010 8:02 pm
Hi Uroman

I do not understand what you maen. I have a urostomy and I thought all urostomies were permanent. So if you have the bag taken away what do you get in its place ?

Maureen
uroman
Aug 24, 2010 2:26 pm
Maureen,



They'll take a piece of colon and make an artifical bladder out of the colon.  The ureters attach to the new bladder.  There will be a small stoma that will be cathaterized every 4-7 hrs to empty the bladder.  Usually the stoma can not be seen because it is in the belly button.  So with all that said there will be no need to wear an external  pieces to collect the urine.
 

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Miss Scarlet
Aug 24, 2010 7:27 pm
Wow Uroman. That sounds amazing. When is your operation. ? Hope it goes well.

Maureen
uroman
Aug 25, 2010 12:56 pm
It is scheduled for the 21st of september.  I'm excited but nervous.  I have been so use to what I have for well over half my life.  Thanks for the wishes.



FYI - if you have any interest in making the switch talk to a pediatric urologist.  They have more experience compaired to the adult urologist.
Catesmom
Aug 26, 2010 3:28 am
Wow, I also have a urostomy and never knew that was an option.

Good luck with your surgery.
uroman
Aug 26, 2010 12:59 pm
catesmom,



Boston Childrens Hospital.  Dr. Nguyen is a pediatric urologist who does this surgery.  In case your interested.



Uroman
girlygirl
Jan 26, 2012 9:21 pm
wishing you every success with your op. wish it was an option for us all but for a lot of us its permanent, but i suppose we learn to live with it..eventually!
vanessavy
Sep 04, 2012 12:53 am
I never knew anyone that had this but I know of people so congrats! It is similar to my contient ileostomy but for the bladder. I debated having one since I have bad Interstitial Cystitis but I am not sure I could manage draining 2 pouches even though I know of a model that has a Kpouch and a Bladder pouch aka The Indiana Pouch. http://en.wikipedia.org/wiki/Indiana_pouch
Cornet
Mar 25, 2015 9:40 am

Fascinating topic uroman.  Had heard of this but assumed the bladder emptying was difficult.  I guess by now you've had the op, so would like to hear how its all working.