My past

So i am 27 years old, i have no kids and have never been married. I have had my ileostomy for3 years now, and it is permanent. I had a temporary one for about a year and i had it reversed, but the reversal failed and i had a permanent one put on. I was originally diagnosed with Ulcerative Colitis in 2005, and then after three surgeries and the reversal, i was rediagnosed with Crohns disease in 2006. Since having the ileostomy put back on, i have been relatively healthy, so i am thankful, but at the same time i sometimes think to myself why did this happen. I know i cannot think like this because i cant live my life like that. So i try to have a positive outlook on life because with all that i have been through i really shouldnt be here. So i am thankful for my life now.

I know what you mean. Mine was life or death also, but it is very wierd sometimes. I was in the bathroom on an airplane, and I just leaned over, cause I happened to poo when changing it, and I thought, wow, if someone looked in right now, and I was poo'ing from my stomach, they would freak out. I had to laugh tho...soooo strange...

Your story is very familiar to me. I had pretty much the same problem. I was first diagnosed with UC and had a series of j-pouch surgeries only to find out I have Crohn's. It's half a year since I've had a permanent ileostomy. It's good to hear you have been healthy afterwards. It gives me hope for the future.

i would love to chat with you! your story sounds oh so similar to mine. i just recently had my ileostomy reversed and i have a j pouch and i am already having problems with it. i am not over this mentally. i am having a terrible time dealing with this.