Hello all, I'm new here, so cut me some slack. I'm 33 years old and have a loop end ileo; I have no colon or large intestine. I was misdiagnosed twice in 3 years. And my local ER left me walking around septic and in extreme pain for 10 days after a colonoscopy. I had emergency surgery on April 5th this year (2010). So I was by far not prepared to wake up with 14 staples and a bag attached to my belly. Come to find out, what I had for 3 years could have been treated with antibiotics, which means I didn't need the last colonoscopy at all. My local ER failed to recognize the perforated colon due to the oscopy, twice in ten days; therefore, my insides were so infested with infection they had to remove all but my small intestine. No, not fair at all.
Welcome!
Rach xxx
aka lottagelady
Why Join MeetAnOstoMate?
First off, this is a pretty cool site with 37,000 members who truly understand you.
It's not all about ostomy. We talk about everything.
Many come here for advice or to give advice, others have found good friends, and some have even found love. Most importantly, people here are honest and genuinely care.
🛑 Privacy is very important - we have many features that are only visible to members, ensuring a safe and secure environment for you to share and connect.
Create an account and you will be amazed by the warmth of this community.
I think quite a few of us have arrived here via the same route - misdiagnosis or a slip of the knife; you are in good company.
Welcome!
Rach xxx
aka lottagelady
Learn about some basic diet and ostomy pouch routines that can help prevent them.
Definitely not fair, hun, I feel for you. Stay positive, babe. We will all get through this hard time. Love to you, Jojo xx
Getting Support in the Ostomy Community with LeeAnne Hayden | Hollister
Remember that there are a couple of bitter people on here, and some of their comments should be kept to themselves. But other than a few smelly eggs, this site has lots of nice people on here.
Thank you, guys. Man, I wish I would wake up from this bad dream though!
It took me 8 months before I realized it was not a bad dream but an opportunity to find out what is really important. I have no colon, bladder, large intestine, and other things from cancer. Life can be good if you want it to be. At least I am here to say I had a bad day :)