Hi everyone, I'm new on here. I have had my ileostomy since June last year. I was wondering if there were any people on here with ulcerative jejunitis, which is what I have? I was told by my consultant and through my own research that it's quite rare and a result of refractory celiac disease, which I have been diagnosed with. I've tried looking online to find as much info about the disease as possible, but because it's so rare, there is so little. If anybody has either of these conditions, as they usually come together, I'd love to speak to them and find out as much info as I can.
