Struggling with Incontinence 10 Months Post-Reversal Surgery

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205
joanne.rand1968
Dec 09, 2024 8:13 pm

Hi can anyone advise I had bowel resection 2023  and ileostomy  which went really well  

I had reversal  this year which was a lot harder than  having the ileostomy 

but now been 10 mths  still have incontinence issues and day were I can go up to 10/12 times a day depending on on what I eat but I’m still getting  pain in my belly as they removed my rectum and created a new one by bringing the colon down 

my belly is still tender ! Should this not be better by now ???

Maried
Dec 09, 2024 9:27 pm

Have you consulted with another doctor or surgeon who could review your records? Ten months is a long time.

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joanne.rand1968
Dec 09, 2024 9:40 pm
Reply to Maried

I've been signed off now!
I've just moved to a new location and only seen my new GP once, and they did not have my records from my previous GP.

So, I'm not really sure what to do now!

Beachboy
Dec 10, 2024 5:56 am

Do you have a J pouch?  If so, consult with a doctor about "Pouchitis."  You can look it up on the internet too, so you're familiar with this complication.

It's a connected, computer world.  Should be easy for your new GP to retrieve your medical records.

Please post your progress about your reversal symptoms.  It will be a great help to everyone here.  

Tomoszo
Dec 10, 2024 7:23 am
Reply to Maried

It took me about 2 years to be without severe pain from a total collectomy ileostomy back in 1973.  After 50 something years I still have pain on and off.  The way I deflect from the pain is by working and learning new things.  And singing karaoke is my morphine. When I try to sing I have no pain whatsoever.  This is called deflection, but what do I know, I'm old 😂

 

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joanne.rand1968
Dec 10, 2024 7:53 pm
Reply to Beachboy

Thank you. I don't have a J pouch. My surgeon did say that my bowels will never be the same! Lolo

But I do find as well that I get really foul wind!
My belly still feels big and bloated. I can't lose weight as most fiber gives me bad bowel incontinence, so I stick to a high carb diet. I don't know what is next, but

I keep trying different foods.

Beachboy
Dec 10, 2024 8:51 pm
Reply to joanne.rand1968

So your rectum was removed and colon connected directly to the anus.  The rectum holds stool until it's ready to be expelled from the body.  Without a rectum, you will have increased bowel movements.  

You should consult with a Gastroenterologist to see what options are available for you.  

IGGIE
Dec 14, 2024 1:19 pm
Reply to joanne.rand1968

G-Day Joanne,

If it gets worse and cannot be fixed, just remember you can always go back to having a stoma.

Regards, IGGIE

oldtimer
Dec 15, 2024 3:38 pm
Reply to Beachboy

Learned something again. Pouchitis, good grief!