I had my ileostomy refashioned in August of last year. It has now once again started retracting and looks exactly how it did before I had it refashioned. Any advice on what I could do?
Past Member
Mar 10, 2025 7:52 pm
infinitycastle52777
Mar 10, 2025 7:59 pm
That sounds really rough. I'd hate for you to have to have another surgery, but that might be what it takes. Talk to your surgeon or doctor about it. Maybe someone else on here will have better advice. My stoma is starting to retract, but I think it is because I have a parastomal hernia. You might check to be sure you don't have a parastomal hernia, just to be sure that isn't why your stoma is going inward.
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Past Member
Mar 10, 2025 8:05 pm
Reply to infinitycastle52777
A nurse did come see me on Friday, and luckily there is no hernia that they can see.
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Panko
Mar 10, 2025 8:37 pm
I just had my prolapsed stoma amputated and refashioned after 3 years of agg!
Go and see Mr. Ian Jenkins at St. Mark's Hospital, which has relocated to the Park Royal Hospital in Acton, London.
He is a top bowel surgeon who is head of the National Bowel Hospital in England.
I know you're up north, but he will be well worth getting a second opinion and hopefully will sort you out!
TC Adam
Beth22
Mar 10, 2025 10:56 pm
Hey, I have had my stoma redone and moved a couple of times and with retractions. So when it comes to retractions, if a convex wafer or deep convex wafer doesn't work, or anything to protect the skin, and you are constantly leaking, they would have to redo your stoma. But since they already did a revision, they would have to do a relocation. Obviously, you are having issues with your stoma being in that spot.
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