SIBO and Ileostomy: Tips and Advice Needed

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ClaraD
Mar 30, 2025 10:32 pm

Hi everyone,
I was recently diagnosed with SIBO and would love to hear from anyone who has had SIBO with an ileostomy. Any tips or advice on managing both would be really appreciated.
Thanks in advance!

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warrior
Apr 01, 2025 1:27 am

Small intestinal bacterial overgrowth? SIBO. Never heard of it.

How do you feel about this diagnosis, which I read as similar to IBS?

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ClaraD
Apr 01, 2025 10:51 pm
Reply to warrior

The doctor explained it like this , she said that my microbiome in my colon is gone since my ileostomy surgery and my small intestines are working hard to take over and produce the bacteria I need to keep me healthy. Problem is it’s doing too much too soon and that led to SIBO - small intestinal bacterial overgrowth.
SIBO causes nausea, sickness, bloating, slows transit but worst is that the small intestines are supposed to absorb nutrients of the food we eat but in my case the bacteria overgrowth is blocking that and stopping the absorption of nutrients. 

I was put on a course of antibiotics but the doctor said it can take as long as 18 month to heal from SIBO. 

I was hoping to find some tried and tested tips for faster healing but my thoughts now are that this isn’t as common as I imagined it to be. 

warrior
Apr 02, 2025 7:31 am

Hi. Well thank you for explaining. Don't give up . U will find people here if they have it.

I mean it doesn't sound too common.  If it was, we would hear more about it.

I think the issue was when u said u were doing too much too soon?  That caused SIBO.

if u feel comfortable explaining what that means, others would be educated and learn what not to do..

This is a rare symptom  bc many of us have their colon removed, yet don't suffer from SIBO.

Thanks in advance. Just sit tight, hon. 

ClaraD
Apr 03, 2025 9:15 pm
Reply to warrior

Hi Warrior

Allow me to clarify, I meant my small intestines is trying to do too much too soon. Instead of slowly building up a new microbiome it’s been overloading which caused SIBO- small intestinal bacterial overgrowth. I can control how much I do or don’t do, but haven’t figured out how to control my intestines yet 😂

I haven’t found any helpful answers yet, I’m still hoping that someone will chime in with some experience and advice here. 

 

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warrior
Apr 04, 2025 12:19 am

They will chime in if they are out here. Good topic starter to catch their 👁  eye.  

Hmm 🤔.  An Over active small intestine. 😟