Rectum Removal Due to Chronic Pain and Failed Surgeries

i am waiting for a date to have my rectum removed after lots of surgery that started with the old piles that didnt go to plan.had to have a colostomy now having chronic peri-rectal pain so no other answer for it.not looking forward to it as this will be my ninth visit to theater in 18months.any one else had this problem

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hey Carolw. i will give you my experience and if it helps, great. i had bad bad bad UC and finally had entire colon, rectum, anus removed(Jul 0

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.now its something i never think about, and i will say, it was strange for awhile as i still wanted to sit down, do my thing, and wipe my butt, but, there was no butt to wipe. no pain(never had much at all)no urges. hope this is not to graphic, but wherre your crack starts between your legs, mine is smooth until about inch from the end. do not know where the got the skin to cover it and really don't want to know.all i do know is my old potty chair and i became might close as we were together up to 15 times a day until i got the cure. life is great. i guess there are things one can no longer do, but i haven't found them yet. you can do it!!!!!!!!!!

thanks bearcat for your time,i hope i can add a smiling face when this is all over.its been a lot to cope with but with a loving husband for 30yrs and three careing grown up children to help i WILL get through this.Its still all new to me as i only had the colostomy in feb 2009.thank goodness for sites like this as i felt on my own untill I joined.nice to meet you xxxx

hey Carolw.let me just add this to my other post.my surgeon was a general surgeon(although chief surgeon of the hospital)viet nam veteran and about 75 years old, but HE WAS GOOD......i had a epidural for 4 days, an auto morphine pump that i

controlled for 2 days and regular pain pills  after that. basically i had no pain at any time, was out of surgery about 5pm on Fri and was up walking at noon on Sat..

this is just info as every surgery is different............good luck

I am like bearcat except mine was removed due to colon/rectal cancer, the only problem i have with my missing butt part is sitting on hard surfaces this is painful for me good luck eddie

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Mine was removed because the Crohns Disease was resident innit. Alreasdy lost my colon in the first 18 months of diagnoses rought oads but wwotyh it now.



2 upsides to no rectum are;



Never having to use crappy public toilets and



You never need to buy toilet paper,,



chin up Carol I had my bumhole removed a few years ago. Apart from a dumb nurses lack of professionalism I havent missed it but my bum is hairier

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I had my colon and rectum out in 2001. They butchered me good,damaged pudendal nerve.I have been in serious pain 24/7 for nearly eight years. Just have to grin and bear it. CHEESE!

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OUCH!

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Hi

I had my rectum removed about 5years ago, I had already been given an ileosotmy some years before this and so when I started feeing like I needed to go to the toilet, I thought I was losing the plot (you know when you hear of people with these phantom pains when they loose a limb)?! I thought that was me anyways turn out it was real due to the blasted cd.

When told I had to have it removed I was alittle scared cause I had read so many horror stories, but glad to say I never had problems everything healed nicely, for a change!

hope you get on ok.

Are you saying that you still had your rectum and felt like you had to go ,even with the ileostomy. I had a colostomy for 25 years and would actually sit on the toilet and pass a small bit of drainage every several months,sometimes longer. Of course they took my rectum and all my colon in 2001, then the ileostomy. Is that the same as what you are saying? If not, were you actually passing fecus or saying it was like a phantom pain type thing? My problem is the damaged nerves(Pudendal Nerves) that causes so much pain. One day if i can make myself ,i am going to go and try to have those nerves deadned with lazer surgery . It seems they could do that ,but who, and where, and do i want to go through more procedures? Hope you continue to do well with your ille-o! call again !

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Yep (this is a bit of a long story)

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- I had colostomy from age 10 then it got changed for an ileosotmy at age 17, and for several years on and off I would feel like I had to do to the toilet and like you would sit on the pan, sometimes little white blobs would come away, but I never mentioned it to anyone cause  wasn't actually in any pain and so I supose just didn't want to deal with it plus I thought people would just think I was totally mad!.

Then out of the blue one weekend I was in terrible back pain I didn't know what to do with myself and the feeling of needing the toilet just escalated, was admitted to hospital, then released following day, later on that night I was re-admitted, eventually I was taken to theatre and they discovered that the stump that had been left had since gotten diseased and narrowed and the white blobs that I was passing was pus.



I can't imagaine being in constant pain with the nerve endings like you, that must get you really down

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I know how lucky I am that everthing went ok with my surgery.



Hope you find a solution soon