Need help with leakage issues from Iliostomy indentation

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4230
mordib48
Apr 20, 2012 1:42 am

I was wondering if anyone can help me with this. I have an Iliostomy and a deep indentation on one side. I use the stomahesive paste but I still have leakage problems from time to time.

tim1948
Apr 20, 2012 1:46 am

Wow, dude... With that indentation, I can't see anything that will help beside corrective surgery. Without a flat or convex surface, there is no way to make a tight seal. I would consult with your surgeon.

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mordib48
Apr 20, 2012 1:52 am

I appreciate your comment. Amazing 2012 and no new way to correct this without surgery.
Thanks,

sooziq
Apr 20, 2012 2:58 am

Wow, been there done that. After 33 years with an ileostomy due to UC, I developed a dip that leaked a lot! Try Eakin Cohesive Seals, a convex faceplate, and an ostomy belt. It worked for me, no more leaks, 5 to 7 days wear time. Good luck, hang in there, it can be fixed. Do you have an ET or ostomy nurse or team you can go to? That is who I call or go to, the same young lady who helped me 34 years ago is still there! And she has the exact ostomy I do. There is always a fix for these problems, but it is very frustrating when you are going through it! Good luck, look up EAKIN COHESIVE SEALS, they will send samples, just call them.
Susie

callie
Apr 20, 2012 1:33 pm

I have been reading about a new product that Coloplast has out called the Mio. It isn't in the USA yet but I called and it is expected to be on the market around the end of summer. It is more of an elastic fit so that you can stretch and mold it to your body (no more leaks). Also, they do have a product that is an elastic tape that is curved the same as the faceplate which also molds to the contours of your body not sure when that is going to be in the USA. Maybe you could ask someone overseas to send you a couple to try. This may be the answer instead of surgery. Hope everything works out for you.

 

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mordib48
Apr 21, 2012 3:07 pm

Thanks for your suggestion. I am a vet. I do believe we have a nurse that might be exclusive for my situation. I have not contacted her because I believe the VA is always a step behind, but I will do so.

mordib48
Apr 21, 2012 3:10 pm

Thanks for the update. I will do some research on this. Hopefully it will make it here soon for all!!!