Leaking and Recessed Stoma - Need Help!

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5645
godswoman
Oct 22, 2012 2:11 pm

Recently I've gone from 5-7 days wear time with no problems to leaking from all sides of the wafer and changing 2 times/day. I've noticed that my stoma has become very recessed. I wear a Hollister 2-piece system with a drainable pouch. I have gained about 20-30 pounds since my surgery nearly 3 years ago. It looks like everything is backing up, rather than going down into the pouch. HELP! This situation makes me feel very discouraged and definitely NOT SEXY to my new husband, but he is an absolute doll about everything!

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Mrs.A
Oct 22, 2012 9:21 pm
Hello godswoman,
I am sorry you are having a problem. I think you should consult your ostomy nurse or your primary care physician. Hopefully, they can explain why your stoma has become recessed. Once you do that (or before), check out the forums. I thought there was a title about this posted.
Best wishes.
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callie
Oct 23, 2012 10:54 am

A light convex wafer may be your answer. Also, if you are having a problem with the product you are now wearing, call all of the manufacturers and ask for samples and tell them that your stoma is flat. Good luck.

Green Eyed Lady
Oct 24, 2012 7:32 pm
Hi, Eakin makes some barrier seals/rings to attach to the flange before adhering over the stoma area. I also wear a Hollister 2-piece convex flange drainable pouch and have one side of my stoma that is flush with the skin - and the other side protrudes as it should. I was in the same boat as you and would be sunk without these barrier rings to add protection, and I can now wear my appliances for at least 5-6 days again. Please contact your Ostomy nurse and ask them about these barrier rings. Also, do not wear a flat flange as it will leak. The barrier rings plus convex flange help to create a solid collar around the stoma and stop the leaks. Good luck!
notexpectingthis
Oct 25, 2012 11:53 am

The convex wafer Eakin is a must if the stoma is trying to recess!!! I was losing up to 4 bags a day, my skin was totally shredded at one point -

Marlen made my favorite light convexity bag - the flange was extremely comfortable, moved well with my body.

 

Words of Encouragement from Ostomy Advocates I Hollister

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godswoman
Oct 26, 2012 1:19 am

Thanks everyone for your advice. My GI said that I needed to see my surgeon because my stoma is completely recessed on all sides, but "Oscar" has been behaving a little better these past few days. Do you know if Edgepark carries the Eakin products and the Marlen bag? If not, where can I get them? You folks are truly a godsend. Bless you all!

notexpectingthis
Oct 29, 2012 2:00 am

Yes, Edgepark is where I ordered these supplies!!!
Melissa
latina63
Nov 01, 2012 1:35 am

Hi there, I am 17 days post-op of my reversal, doing much better and getting stronger every day. Just thought I would mention that I found my Eakins Rings on eBay for a fraction of the cost! I do not have health insurance, so that was a blessing. I usually found them for $48-50.00 for 20 and free shipping. We all know that is a BIG bargain. Just thought I would share, good luck.