How Movicol Transformed My Life with Stoma Issues

Hi All



I had problem with exploding or erruptions which is due to  blockage.



I used to suffered terrible with them, the pain is unbearable, until my stoma nurse suggested I try Movical.



I had tried every laxitive under the sun to no avail, so was a bit dubious as to weather Movicol would work for me.

My diet or drinking plenty of fluid didn't help ( I drink gallons of cranberry juice a day) .

I went to see my Doctor and asked him to perscribe Movicol for me to try.



I haven't looked back since, no more unbearable pain, the motion comes through like toothpaste and it has changed my life.



I have to take 2 to 8 sachets a day, if I forget then I am in deep trouble again ( so best not to forget...LOL)



I have a visit from my stoma nurse the 1st Tuesday of each month, and her advice and reaasurrance is invaluable to me.



If you have any questions about anything, please let me know, and I am sure I can get the correct answer from her.



Take Care all my Stoma Friends.



Speak to you soon



Hugs



JeanXX

Hi Jean.  I haven't had the problem that you speak of.  I have a colostomy.  But a friend of mine with an ileostomy has had problems with blockage.  She has been in and out of the hospital due to it and it has been extremely painful at times.  I do not believe she is taking anything for it.  Her surgeon told her that this is something that she will have to deal with.  I was wondering if you have an ileostomy and if this is something common to those that do?  Thank you for any info you can give me.  Debi

Hi Jean & Debi....I'm kind of new, so this may be a dumb question.

Does a colostomy (what i have) ever get a blockage, and when a ilieostomy does get a blockage, is it internally or at the opening?

Thanks, Hannah

Hi Hannah, Ed here. When you get a blockage with an ileostomy it is internally and man o man can it do wonders for your vocabulary, I've had quite a few and wanted to die, even Morphine was not enough to take away all the pain, finally a local surgeon said Ed I can take care of this shit for you, I said go for it, he did and for the last three years have never had to go through that again. By the way you're doing a hell of a job in these forums, many thanks. Ed

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Hi again folks.  Hannah, I have never had a problem with blockage but my friend has and I think it is due to scar tissue.  Was that your problems Ed?  What I don't understand is if they do surgery to remove the scar tissue then it seems like there would be more scar tissue.  Can someone explain this to me?  Thank you, Debi

Stories of Living Life to the Fullest from Ostomy Advocates I Hollister

Hi Debi



Many thx for your reply.



I had a ruptured bowel about 10 years ago and it almost cost me my life, when I woke up six days after the op I was horrified to find I had been operated on and a diversion done.



I woke up with a stoma.



After a long recovery I decided not to go down the road to have a reversal and get on with my life with the stoma.



My diet is pretty healthy, but I don't eat much fruit, I do drink a lot of cranberry juice which I thought might help avoiding any blockage, but it didn't.



My Doctor perscribed me umteen different laxitives to try and help the problem but to no avail.



I have a stoma nurse who visits me once a month, and brings my medical supplies.



I mentioned the problem to here and she suggested I ask my Doctor to perscribe MOVICAL for me, which he did, and it has helped with the problem in a big way.



I have to take between 2 and 6 satches a day but it is worth it for the relieve I get from not suffering the agonizing pain of a blockage.



I do hope this helps.



Speak to you soon



Take Care



Jean

Hi Hannah



Many thx for your reply.



I think the answer to your question is that is is just like a blockage of the colon, and nothing moves, hence the blockage.



In some cases the blockage has to be removed by going into hospital, but THANK GOD I haven't had to do that yes.



My stoma nurse asked me to ask my doctor to perscribe MOVICAL for my which in a laxitive and works gently to move the motion through the system.



I have not looked back since using it.

I have to take 2 to 6 satchets a day, but it keeps the blockages at bay so it is worth it.



Hope this helps you



Speak to you soon



Take Care

Jean

hello have you tried the natural remedies like apple juice prune juice and stuff like that my system is like a babies feed me apple juice and boy oh boy lol

Queen of obstructions here! If a doctor would so much as look at my stomach I would get one. For the most part I would fix it myself at home by drinking lots of water and eating room temperature apple sauce and just relaxing. Not letting anything stress me out so my intestine would settle down and things would get flowing again.



After my surgery I was told not to take any kind of laxitive and I haven't, not to mention as soo as it hits the back of my throat I tend to throw up (just ask the nurse who didn't beleive me)



I do however get to a point I can no longer deal with the pain and I'm actually throwing my own "stuff" back up . WHen I start throwing up dark green/black stuff it's time to go.

Hi Debi



many thx for your reply.



i had surgery and a stoma put in place 10 years ago.

I had terrible problems with constipation and blockages until my stoma nurse sugessted MOVICOL, I have not looked back since.

I take between 2 and 8 a day, it comes in satchets and I mix it with water.

I very rare get a buid up now, but when i do it is extremely painful



Hugs

Jean

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I am wondering about the pain issues -- sounds like they are  not the actual stoma but from the remaining intestine that is blocking with adhesions or whatever -- mine is a permanent ileostomy and have had some issues with burning at the stoma - have that straightened out - but the system works fine.



Adhesions are horrible and if you do have further surgery ask for the adhesion covering that prevents them -- I learned about it at DHMC in NH



Wish all of you the very best



Ewesful