Hi I was diagnosed with chronic Gastroparesis 4 months ago but have had it for at least 2-4 years. I’ve just come out of the hospital due to severe complications and I can’t eat anymore. I’m living on special dietary drinks only and getting sicker day by day. I have an appointment with the top Gastroenterologist next week and will be having a tube put in to bypass my stomach to feed me due to severe malnutrition. Is there anyone on here that has this dreaded disease? If so how do you deal with having an ostomy with GP? Tia X 😕
rosebudd44
Jan 16, 2018 11:08 pm
First off, this is a pretty cool site with 39,614 members.
But, it's not all about ostomy. We talk about everything.
Many come here for advice, others find lasting friendships, and some have even found love.
🛑 Privacy is very important - there are many features only visible to members.
39,614 members
Past Member
Jan 18, 2018 11:34 am
I had a look on the internet and found that there are dieticians with expertise in gastroparesis.
This was the link https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1954884/
Let me know if you want me to research whatever, to find dieticians with expertise in gastroparesis . . .
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Raydog
Jan 22, 2018 2:59 am
Hi Rosebudd44: Have they ever put a pic line in your arm to feed you? I had one in my arm 3 weeks, with no solid food. Just saying. Hope this is helpful, Raydog.
How to Adjust to Life with an Ostomy with Bruce | Hollister
rosebudd44
Jan 22, 2018 5:03 am
Hi Raydog thanks for your reply. Yes I’m seeing my GI surgeon on Thursday to discuss a feeding tube and a pain pump. I’m living on Fortisip and ensure supplement drinks, 60ML 4 x day which is not enough to keep me going? I’m hardly tolerating liquids like cup o soups, icy poles and ginger tea. The sooner they start giving me some nutrition the better. I’m getting weaker by the day. Hope your doing okay and thanks again. ??'?X
warrior
Dec 08, 2019 7:38 pm
hi, i dont know if you're still out here or not.. i have had a feeding tube placed directly into stomach. i do not understand your feeding tube"bypassing" the stomach. that doesnt sound right. are they just feeding the you directly into the intesting? my understanding is the tube bypassed the throat. this is where i had stricture. couldnt swallow. so your story intesrests me on how u can get nutrition bypassing the stomach.. a central line not in the arm but high up in chest would be a better option for you for fluids. or meds.. an arm i.v. will blow out and you will end up with blackand blue marks.. so consider that central line. good luck. i hope yur doing better now.