High Output Ileostomy and Recurring Pain Issues

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K.brooke.ileo
Jul 28, 2018 9:19 am

Hihi

 

First post .  Alo Alo all :).  

 

My profile has the history .  So appending that . Currently constant gurgling and paristalis cramping.   Loosing almost all food as output is small cubes amidst torrent of fluid.   

Gas passing via ileostomy too amidst these bursts of food and water.   Feeling drained out....    Very painful but not as per blockage. (I've had 3 with emergency surgery and the pain was incredible with black outs :( ).  

 

So . I wonder what's diff.   5 days into this current difference.   No appetite.   Taking all usual meds (loadsssss of these ).  Weight tanking .  Again.....    

 

15 years ileostomy so not new to differing periods at all.   This is somewhat more severe.   Gas gas gas water bile food undigested.    Fun !   Not eating anything different recently.   I do have small bowel restriction in areas related to scar tissue from prior resections from blockages and food moving thru here is very very noticeable !   Painful but I manage.   Used to that .Heh

 

Hope we can chit chat and any ideas appreciated !   

 

Uc/crohns/full large bowel Colectomy/Brooke ileostomy/epilepsy .  :) .  

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iMacG5
Sep 02, 2018 7:32 pm

Hi K.brooke.ileo. I can only imagine your discomfort and wish I could offer a remedy. I have a colostomy and believe that's somewhat different from your situation. I don't know a lot about this stuff, but I do know you shouldn't be suffering like you are. The UK might handle things differently, but there must be some treatment methods to alleviate your pain. If I learn anything useful, I'll send it out to you immediately.

Wishing you well with respect,

Mike

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