Stoma Prolapse Experiences and Advice Needed

hi guys,  first i must say i love this site!! and the way you help each other!! its great!

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ive had my stoma since jan, due to cancer, my bottom is still leaking due to the radiation i had before the op,  and my stoma seems to prolapse a lot!! which is annoying at times, sticks out a good inch or more, my stoma nurse tells me a lot of people get this, as i dont know anyone with one, i wondering if any of you have this trouble!!???

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Have to say that I nearly threw a hissy fit when mine suddenly changed shape in front of my eyes for the first time!



I think that it is just normal movement - peristalsis, which makes the waste move down the digestive tract, so suspect nothing to be concerned about.



Keep smiling, Rach xx

An inch is good,, mine is about 3 inches long and hangs like a limp,,,,,,, well you get the idea,,

I've never been succesful using that as a chat up line!

yes i to have the same thing i dont like it but the doc said to deal with it cause to save me for another surgey if needed looks funny sticking out as far as it does when i wear my shirts and so it causes people to look and wounder y i shirt is sticking out different but oh well no heaving lifting sit on but since thats all its good for and go fishing to sit some more

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Hi there, well mine started prolapsing a few months after I had my stoma, at first it used to shrink back in when I laid flat, but as time wore on it became much worse, and wouldn't go back at all, at it worst it prolapsed about 5-6 inches and looked very unsightly. I had trouble getting a bag over it, ulcers formed and kept bleeding, and bag leaks were a nightmare, plus none of my clothes laid flat, eventually I had it amputated in theatre, since then it's been much better, though protrudes slightly, but nothing like it did, I feel more confident and have no leaks, though I have to wear a convex base plate to fit it properly. I questioned the surgeon as to why it prolapsed, he told me partly because I had an emergency op to start with and wasn't put properly in place, but also because I had frequent watery stools, which meant my peristaltic movement was working overtime. Just keep an eye on it for discolouration, because if it goes purply I was told it means blood flow is restricted which can lead to problems.

thanks for that Rhian,  i will keep an eye on it, at the moment it does lie flat when im relaxed, ie,in bed on sofa, and somtimes walking about, i hope it will stay that way!!,

worrying tho,  the joys of having a stoma!!

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thanks,  wendy,