Sharing My Ostomy Journey: A Personal Reflection

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narrator
Apr 03, 2010 10:28 am

I have never been one to tell people I know about my ileostomy. Not out of shame or anything like that. I wouldn't be alive without it. I guess I just figured that I didn't want it to define me. Or maybe I didn't want to have to explain it to the uninformed. Feces is not your typical water cooler conversation. (I'd almost prefer it to the constant chatter about Dancing with the Stars, Survivor, etc.) In fact, until four or five years ago, none of my coworkers knew. There is nothing like publishing an ostomy novel to out you as someone who has one. But it wasn't a big deal. Not surprisingly, it didn't make any difference in how they saw me. And it made it easier to be able to say things like I edited a newsletter for the local ostomy chapter rather than the more ambiguous term "non-profit group." And then when my daughter also needed ostomy surgery, I didn't have to launch into any explanations of what kind of surgery - I just told them it was the same as I had, so the book did me a favor really.



So I am still not quick to tell new people about the ostomy, and that's okay, too. It still doesn't define who I am; it is just one part of me. Well, perhaps I am just a little quicker to tell people, thanks to that darn book.

Past Member
Apr 03, 2010 11:34 pm

Totally agree with not wanting to be defined by an ostomy...firstly woman, daughter, sister, friend, girlfriend, lover, mate, and then maybe ostomate!

I did actually tell all my coworkers, but I work in a medical environment, so it was no big deal as most actually knew what one was. But, as with most things in life, it is always on a need-to-know basis. My workmates were just happy to see me healthy for a change!

Have enjoyed reading your blog, so I am really curious as to where I can get a copy of your book!

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Past Member
Apr 03, 2010 11:46 pm
And I think I just answered my question with a look at the classifieds!!!
Amazon awaits!
Cheers!
narrator
Apr 04, 2010 8:51 am
Thank you for your interest. It was an e-mail from the site administrator that suggested I do a classified ad. Promoting my book is not exactly my strong point! Where in the U.S. are you visiting?
Past Member
Apr 05, 2010 12:41 am
Staying in KY (with a fellow ostomate I met on here actually).
"Caught Holding the Bag" is on order and I am patiently awaiting its arrival!
Cheers!
Jo x
 

Living with Your Ostomy | Hollister

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CALYPSO
Apr 19, 2010 10:04 am

I felt terribly ashamed about my ileostomy. I decided if I didn't want anybody to know, I shouldn't say a word. That included my family. I didn't want the sympathetic looks or the knowing glances. It's been 10 months now, and I am still relieved no one knows; that's the way I want to keep it! Good luck with your book.

JeffK
Apr 23, 2010 4:02 pm

I am not ashamed or shy. I will talk about it if I am asked, usually after my Ileo tries to join the conversation. I will not bring the topic up in conversation, though. I will not let my Ileo change who I am and what I like to do, but it has modified how I do things. "Just like getting older has."

narrator
Apr 24, 2010 12:16 am
Hmm... well, I still don't bring it up in conversation, even with those that know about it, but I am glad there are some who do know. Mostly for the reason I mentioned - if my daughter's problems with her ostomy come up, I don't have to explain all that or state it vaguely.