Just checking in!

Hello to my Ostomate friends!

I know this is weird, but even though I have been reversed now for almost 3 years (2012), I still consider myself an ostomate or a friend to the ostomates! I check on here periodically and see if anyone needs support. I have been doing well; I have started chemo treatments as I have a small tumor on my liver. It is stable, but they want to whack it before it grows (Carcinoid cancer is non-aggressive).

As far as my crazy colon and BMs, they are better, but I still have anywhere between 3-10 BMs a day. I will go about 2 months before I get the rectal spasms, which are very painful, and I will poop about 20 times! It used to be every day, so it is getting more spaced apart. My connection was very low (mid rectum), hence my problems, but I am thankful and have accepted my "new" normal. Hopefully, it will continue to get better; it just takes time. Our guts take a lot of time to heal!

Hope and pray that everyone is healthy and well, God bless!

Hi Latina, it's good to hear you're doing well and adjusting to your new normal. I hope and pray the tumor gets taken care of quickly. How did they find it, a scan? Thanks for the good wishes, but mostly the prayers! Take care and keep keeping us posted. You will always be welcome here!

Thank you Mrs. A! Yes, I have to have scans every six months so that is how they found it. It is tiny but like I said my specialists like to take care of them early on. I don't know if you have ever heard of Carcinoid but it is very rare and is not to be mistaken with Carcinoma which is very aggressive. It's just more of a hassle, chronic illness kind of cancer which requires maintenance or it can kill you.

No, I can't recall hearing of Carcinoid but I'm glad your specialists keep a good eye on you!

Latina63, I had a Carcinoid tumor inside the middle lobe of my right lung in 1996. They removed the entire lobe but I did not have to take chemo or radiation treatments. In 2016, my descending and sigmoid colon were precancerous but that decision was avoided when my colon burst. I had 18 inches of my colon removed and a colostomy added. I hope you are soon entirely free of cancer. I am a retired minister and I know prayer works, so I will be praying for you.

Living with Your Ostomy | Hollister

Oh wow! I'm cancer free and stable thank God, (I am a preachers wife) so I believe in prayer also :-), living with a bag for a year taught me so many things, I wouldn't take that year back for nothing. I still come on here periodically to see how everyone is doing and to see if I can help someone!