Ileostomy for about 3 months and going to have it longer. I dunno how long since I've got complications.
Some history:
I had one bad episode at the beginning where we didn't know about the crusting method and nobody told us. We were sticking it directly onto my skin. I rashed up and my skin broke up and was weeping. We couldn't get a bag to stick, my wife was paining me trying and she broke down crying cause she didn't want to keep hurting me. Went to the local ER, and this doctor pained the crap outta me trying to stick a bag using benzoin compound that's 77 rubbing alcohol. Had me screaming and bag still didn't stick. Told me, well there isn't anything else I can do for you. Drove an hour to get to bigger hospital that had ostomy nurses. One tried and failed. Then they had a team working on it. They managed to get it to stick for 9 hours. My home health nurse came out and pained the crap outta me but couldn't make it stick. So I ended up just laying on my stomach with something under me to catch the poo for a couple days while I healed up and the crusting method started working. Haven't had any problems since. Crusting has been working great.
My question:
But do I have to do this as long as I have it?
My system:
Every time I change it out, we clean it, shave it if needed, dry it real good, then powder and skin barrier times 3. I also wear a belt to hold it. 2 piece Hollister system wax rings. I also wear perforated medical tape to extend life, sorta like the ostomy barrier stickers but they're too expensive to keep using. And this last me 4 to 5 days usually.
Pic of me in ICU Feb 25 just because damn that was a horrible experience. No pain meds because my blood pressure was too low due to blood loss during surgery. Cowboy style, just bite my wallet and hold on.
Thanks in advance!!
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