Hi,
My first post and glad to be speaking with people going through the same challenges that I am. I have an issue, which has been there for almost two years now. I have tried a few things which I will cover, but wanted to know if anyone else has gone through this and has a fix.
On the very edge of my stomach skin and the stoma, I have a sore patch about an inch long and a few cm wide that comes and goes. I thought I had cracked it by using these new rings that have Manuka honey in them, as it seemed to resolve the issue and the soreness went away.
It is back, and I am aware it's to do with how the bag fits snugly around the stoma but my weight has fluctuated so of course so will the stoma width. In short, I have tried: Manuka honey rings, various creams (but these aren't sticky enough so the ring lets waste in and makes it worse), Coloplast barrier spray and wipes (probably the best results so far) and a very strange red liquid provided by my stoma nurse which worked perfectly BUT again it makes the area not sticky so of course the rings come loose.
Has anyone found a cream for sore patches that protects the wound/patch, allowing you to stick the rings and bag solidly around the stoma? I am working on getting two different sized bags to help with this issue.
Finally, how did you all measure your bag hole successfully and accurately to ensure no skin is exposed? Did you use a partner or friend to help size it? I tried a mirror in a few ways, and I still don't think it's perfect. Again, any suggestions would be greatly appreciated.
Apologies for the long email.
Thanks,
Paul.