Hi, I have an ileo and a large peristomal hernia. I have been having issues lately with my peristomal hernia getting very large. I'm dealing with the surgeon and can't see the ostomy nurse until next Friday. Right now my stoma is fully protruded all of the time and bothering me. This week I've noticed bleeding and ulcers on the stoma itself. Anyone else have ulcers on your actual stoma? They look just like canker sores you get in your mouth but on the stoma itself, not the skin around it.
Hi WJ, I've had those occasionally on my stoma over the years and they don't seem to be a problem, but I keep an eye on them.
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Hi Crossley. Ya know, I think it’s all about feelings. I don’t mean the pain feelings which could control everything. I mean the feelings inside our heads, our hearts and even our souls. I mean the feelings of who we are now compared to who we were; how we accept our situation or maybe we don’t. My wife asked how I felt and I said, “like crap”. She asked what hurt and I answered, “Nothing hurts, well, everything hurts, I don’t know, It all sucks.” That was a long time ago. You question if your feelings are normal. How normal is it to relocate your butt hole to your belly where it’s usually in the way of your belt and, you know. But that’s where we are and for lots of us we are so much better off than we were before, physically. Emotionally, psychologically, well, that might be a different story. I believe talk therapy is wonderful if we could find a real empathic or sympathetic listener. So guess what! I found MAO and began “talking” with a keyboard with some of the wisest, kindest most sympathetic and compassionate folks on the planet. Regardless of where we’ve been, lots of folks here have been there and worse places and found their way back healthier and happier. We really do help each other.
Keep “talking”,
Mike
I had a sore that was bleeding on my stoma, and it turned into a prolapsed growth. It wasn't there the morning of my surgery, but it was when I was released. My surgeon cut it out in the doctor's office, sent it to biopsy, and found out it was cancer. Cancer caused all my issues. I hope that's not the case for you. Just make sure you get any growths removed and biopsied.
This is actually what I came here for today.
I had revision surgery on 2/07, and I've noticed blood seeping from the actual stoma every time I change the bag. The stoma before revision was retracted, so I can't say if it bled like that or not. But it's a constant bleed, not a large amount.
When I googled, it mentioned varices (sp) as a possible cause. I have a follow-up with the surgeon on Monday.
I also noticed yesterday that the stoma has a gap all the way around, like a moat. And I don't know if there is supposed to be a gap or not.
