Hi, I have an ileo and a large peristomal hernia. I have been having issues lately with my peristomal hernia getting very large. I'm dealing with the surgeon and can't see the ostomy nurse until next Friday. Right now my stoma is fully protruded all of the time and bothering me. This week I've noticed bleeding and ulcers on the stoma itself. Anyone else have ulcers on your actual stoma? They look just like canker sores you get in your mouth but on the stoma itself, not the skin around it.
Hi WJ, I've had those occasionally on my stoma over the years and they don't seem to be a problem, but I keep an eye on them.
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I had a sore that was bleeding on my stoma, and it turned into a prolapsed growth. It wasn't there the morning of my surgery, but it was when I was released. My surgeon cut it out in the doctor's office, sent it to biopsy, and found out it was cancer. Cancer caused all my issues. I hope that's not the case for you. Just make sure you get any growths removed and biopsied.
Did they call them granulomas? My ostomy nurse wasn't concerned about mine and didn't say what it was. I've learned a lot since my last visit and am starting to think my ostomy nurse is lacking wisdom in this department.
I'm getting closer to calling my ostomy nurse to get an idea of how bad it needs to be. I'm not having any major issues other than the pup tent issue. 🎪
This is actually what I came here for today.
I had revision surgery on 2/07, and I've noticed blood seeping from the actual stoma every time I change the bag. The stoma before revision was retracted, so I can't say if it bled like that or not. But it's a constant bleed, not a large amount.
When I googled, it mentioned varices (sp) as a possible cause. I have a follow-up with the surgeon on Monday.
I also noticed yesterday that the stoma has a gap all the way around, like a moat. And I don't know if there is supposed to be a gap or not.
