I have watched the videos and read the comments so far on this StomTop device.
My initial reaction was to think that it is useful to have people who are still trying to develop new and alternative devices for use with our stomas. It would need a lot of testing and perhaps a bit of redesigning to be acceptable as a safe medical intervention and I feel that there will be contra-indications for quite a few people with stomas.
Having tried several different (yet similar) DIY approaches, I might take this opportunity to share some of my experiences.
In previous posts, I have expressed the view that stoma devices should be made ‘bespoke’ for every individual. This is because each time I experiment with something new (DIY), I find that it needs ‘tweaking’, sometimes several times, before it attains a suitable ‘fit’. Often, after much tweaking, some of these devices simply need to be discarded as being impractical in the ‘real’ world of stomas.
(1) Anyone who has successfully used stoma plugs, will know that they can work quite well for the majority of the time. However, there are occasions when the peristalsis is so powerful that it pushes the plug completely out of the stoma. Fortunately, there is/was a stuck-on wafer to help prevent a messy incident from occurring (if you can identify the problem in time to quickly do something about it. Interestingly, the stoma plugs have now been withdrawn from the market without any explanation. I suspect that ‘some’ people have had problems with them and made complaints(see also item (2) below).
(2) I have made several ‘devices’ to emulate stoma plugs yet allow for output (including gas) to flow through them rather than have them blocked inside the stoma.
Several unforeseen problems arose which may also become a problem for the StomTop device. The first and most significant was the fact that the walls of the (my) colon seem to have the characteristics of an octopus, in that they can reform/remold and block the entrance to these devices. They can also cling to the material, which makes it harder to withdraw the devices, with the potential for causing damage. If this happened with the StomTop device, then not only could it cause a ’blockage’, but it could make it very difficult to remove the device because the inserted end would be blocked open. (This was the reason that the anal plugs were not suitable for stomas!) Removing such devices is much more likely to cause a prolapsed stoma.
(3) Whilst the concept seems sound enough, there is still the possibility that some output may get around the ‘plug’ end of the device and seep along the outer side. If this happens, then (with this device) there is no failsafe method to stop that wayward output from leaking onto the skin and causing more problems than one might have had with a stick-on wafer.
In conclusion, I would say that (from my own experiences) these types of devices are likely to be of very limited practical application for most people with stomas. However, they do have the potential to resolve issues for a few people who can tolerate the ‘intrusion’. However, they also have the potential to cause various forms of permanent ‘damage’.
I cannot think how such devices could/would be financially profitable for the manufacturers, but if they can work for a few people, then great! However, I hope that there will be sufficient ‘insurance’ to compensate those who fall foul of the unforeseen consequences of such experimentation.
Best wishes
Bill