Hi everyone,
I had an ileostomy for 7 months while I was undergoing chemo for a colon obstruction. After 6 months of chemo and immunotherapy, my cancer was gone and I was able to schedule an ileostomy reversal.
It's been almost 3 weeks since and my gut is still trying to figure out what it's supposed to do. It took almost two weeks for my colon to start working (I was on IV nutrition only during this time) and when I finally moved to soft food, I finally was able to poop. I'm home now and even though my stomach is still swollen and the "wound" where my ileostomy was is still healing, it gets better and better every day.
I had a LOT of cramping, swelling and gas while all of this was happening and I still have some but less. What I'm here to say is it was totally worth it! I had a very high producing ileostomy and literally never stopped eating or emptying the bag every day. It was brutal and a total beating so the second I was able to reverse it, I did.
For me, it was 7 months of experimenting with bags, getting help from a stoma nurse who would come to my house and exorbitant food bills. I was never full...just constantly eating yet losing so much weight I looked like a walking skeleton. Hang in there! I'm so glad I did the reversal. You won't regret it!!
Best,
Kathryn