Tips for Managing High Ileostomy Output

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125
corlsharonl49
Jan 05, 2025 8:05 pm

Hi. I have an ileostomy and my output has always been high. Right now, the ostomy nurse is having me use Imodium three times a day. Has anyone experienced this, and what tips do you have?

Beth22
Jan 05, 2025 8:32 pm

I am sure you have, and I don't want to assume you haven't tried different foods. In case some foods: mashed potatoes, bananas, bread, bagels, applesauce, pudding, peanut butter.

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Morning glory
Jan 05, 2025 8:35 pm

The Imodium is good, also the foods that thicken your output such as Beth mentioned.

warrior
Jan 05, 2025 11:25 pm

Oatmeal Raisin cookies will help.

I found Metamucil gummy bears help slow mine down... gotta have the gummy! 👍

All week it's been an improvement. It takes time though... trial and error.

corlsharonl49
Jan 06, 2025 12:30 am
Reply to Beth22

Some help and it's still trial and error. Just wish I could figure out the right ratio. I've heard marshmallows too, but I don't see much success there.

 

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warrior
Jan 06, 2025 12:40 am
Reply to corlsharonl49

Oh ye of little faith... don't expect any slowdown too quickly with advice. Your body has been through hell and is adjusting slowly too.

Patience, luv... Rome wasn't built... well, you know this part... 🤭

Beth22
Jan 06, 2025 1:09 am
Reply to corlsharonl49

When did you get your ostomy?

Anne_Shirley
Jan 06, 2025 4:50 pm

I have the same issue. I have a very high output ileostomy. I got mine 11/18, so it’s fairly new.

I have to take psyllium husk to thicken my stool, as well as applesauce, potatoes, carrots, rice.

If I’m not eating enough, my output goes insane. Nothing but liquid and pouring out. But as soon as I eat something substantial, it slows down.

I can’t take Imodium bc it makes me very….loose lol the opposite of its intended use. 

Do you ever get dizzy/faint? I do. I’ve passed out quite a bit since the surgery. And that’s bc of how much I produce ☹️

Try eating a small amount of some stool thickening foods every 2-3 hours, no liquids when you’re eating. Wait about 20 minutes after you finish to drink any liquid.

Avoid chocolates and anything that can liquify the output. 

Im sorry you’re dealing with this, but here we are, 2 peas in a pod 🫛 

Good luck and please send a message if you hear of anything that may work that I didn’t mention. 😊