Support

Replies
8
Views
170
emilyr81
Nov 03, 2024 8:04 pm

Hi, I have been lurking here for a bit but am trying to be more brave and reach out. I’ve been having a very difficult time living life with an ileostomy. I am hoping maybe I can find people here to talk to and ask questions that can relate with all this.

 Look forward to hopefully chatting soon! 

w30bob
Nov 03, 2024 8:45 pm

Hi Em,

If you've been lurking, then you know this place is full of 'em... so jump right in and ask away. What have you got to lose?

;O)

Gray Logo for MeetAnOstoMate

Why Join MeetAnOstoMate?

First off, this is a pretty cool site with 37,000 members who truly understand you.

It's not all about ostomy. We talk about everything.

Many come here for advice or to give advice, others have found good friends, and some have even found love. Most importantly, people here are honest and genuinely care.

🛑 Privacy is very important - we have many features that are only visible to members, ensuring a safe and secure environment for you to share and connect.

Create an account and you will be amazed by the warmth of this community.

Beachboy
Nov 03, 2024 9:41 pm

Yes, post what you're feeling.  Your progress, setbacks.  We've all been there.

Welcome  😊

TerryLT
Nov 03, 2024 10:25 pm

Hi Emily,  Welcome to the site.  I was a fly on the wall for a while too.  Don't be shy about asking questions, or venting frustrations.  We've all been there.  

Terry

warrior
Nov 04, 2024 1:36 am

Ditto what everyone has said.

Wish granted. Hope fulfilled!👍

 

Getting Support in the Ostomy Community with LeeAnne Hayden | Hollister

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Morning glory
Nov 04, 2024 4:51 pm

Glad you are getting your feet wet. Jump on in with any concerns or questions. You have already seen we are a welcoming group.

TommyGee
Nov 10, 2024 6:07 pm

Same thing happened to me when I was 21! I had a pretty good outlook when I woke up from surgery and realized I was alive... so that's the first great thing. It is rough for the first year-ish... but I can promise you it soon becomes a part of you and if you get into some good habits, you don't even think much of it. I've had many amazing, normal, and even beautiful wives (2) and people I've dated that weren't ostomates. I've had this for 35 years now... happy to communicate with anything you want to ask!

-Dan-
Nov 10, 2024 6:27 pm

Hi!!

You're not alone and in the right place.

Support, shared experiences and general rant/vent. 

Ask and/or chat away!!

 

 

Isla is my sunshine
Nov 10, 2024 7:03 pm

I too have a permanent ileostomy. The thing seems to dominate my life!

After every meal, it starts, soft stool, then pasty, then water. Yes, I take medication, lots of it.
I have low iron and take iron by mouth in the middle of the night when I empty, which is three or four times a night.
Does anyone else have this much difficulty?