Catheter Colonoscopy Prep Through Loop Ileostomy Pain

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136
humdrummer123
Nov 10, 2024 7:02 am

Had catheter inserted through loop ileostomy for colonoscopy prep. I was already having pain leading up to right under the stoma, but holy schneiki, it was painful. I went into shock and couldn't stop sweating and almost passing out, and luckily the nurse intervened and told the surgeon I was not looking so good. Why wouldn't pain sedation be administered prior to this? Am I the only one to experience this nightmare?

warrior
Nov 10, 2024 10:06 am

Good question about the pain medication. Ask your sloppy surgeon next time.

I was informed on here from a member that there are no nerve endings in a stoma. You could shove a finger up there and not feel anything.

Another member said there were nerve endings. She appeared to have had extensive biology schooling.

I don't know what to tell you, my friend. Even a regular scope, they knock you out.

Insist, demand it next time. The meds. You will need a driver to take you home though.

Maybe the pain you experienced is part of the symptoms you are having, requiring the scope.

You had a raw deal, man. Advocate for yourself.

 

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Justbreathe
Nov 10, 2024 11:25 am

Yowowch!!! I guess the good news is that it's over! Next, you will certainly be more inquisitive the next time a doctor wants to perform a medical procedure. Sometimes I feel like an experimental animal... this is probably why all those monkeys escaped that facility in S.C. Maybe seek a new doctor...

humdrummer123
Nov 10, 2024 4:23 pm
Reply to warrior

Ty warrior. Appreciate the feedback and you couldn't be more correct about self-advocacy. Learned that more than anything navigating our healthcare system.

RoCkStaR_Kelly
Nov 14, 2024 3:02 pm

Eeeeek! Oh no! So sorry that you experienced that level of pain. Grateful the nurse spoke up! I don't have a loop but I can relate somewhat. I had my first colonoscopy in 2003 when I flat lined in hospital. I woke up mid procedure and they couldn't drug me in that state so it was torture TBH. I know that helped me tremendously and created the advocate I am today. I demand sedation, I am a staunch advocate for my own best interest because no one else knows how we feel better than ourselves. Reach out anytime I'm always happy to support other ostomates in self advocacy. 

I will also say that first colonoscopy was the only one that was THAT awful. Grateful to not have a colon for any more of those! We are strong individuals when we are fighting all this pain and still pushing ourselves. Speaking up only makes us stronger in our journey. 

 

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humdrummer123
Nov 15, 2024 7:27 am
Reply to RoCkStaR_Kelly

Hi. Pleasure to meet you, and I can't express my gratitude for your support. I've been throwing myself a mini pity party lately, but when I read and hear some other people's stories, I am humbled and quickly appreciate the things I do have. I am very sympathetic about how long and challenging your journey has been, but also inspired by you. The before and after photo is quite the contrast, and you look so much healthier, happier, and stronger. I would be honored to know you better and hear more of your story. I'm a musician and athlete and have played drums in bands for years. Kind of a metalhead but love classical and all music because I played piano and trumpet for many years as a youngster. But enough about me... I hope to hear back and hopefully be a support and inspiration for you as well.