Thoughts of Wisdom

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9
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286
Superme
Dec 01, 2024 4:06 am

I've had an ileostomy for 45 years. I have been through many situations and here are a few things that have helped me along the journey.

If someone asks or thinks you have a disability, tell them you have an ability. You can do everything anyone else can and sometimes even better. Don't hide the fact that you have an ostomy. I had emergency surgery when I was just 20 years old. My doctor told me that I almost died and was amazed that I survived and progressed fast in my recovery. There were doctors observing me and writing lengthy journals. When my friends and family came to visit me in the hospital, I told them all about my surgery and showed them my new pouch and scars. They were not freaked out and they did not abandon me. Keep a positive attitude no matter what your condition is. Talk to people. Tell them your story. The worst that could happen is that they walk away. If they walk away, they aren't worthy of you anyway. Try again.

I have had many relationships and I have been married 3 times. The first for 19 years, the other two 5 years each. All of them were when I had an ostomy. I divorced them all for different reasons. I left my exes in Texas.

Find a social event you can participate in. It could be a gathering, a sport, a class, or at work. Travel with confidence.

Keep hydrated. Try foods in small quantities. Chew, chew, chew. I can't stress how important this is to keep yourself out of the hospital.

Keep smiling. You are as beautiful as you feel. Don't hide it from others.

God bless you all!

IGGIE
Dec 01, 2024 5:44 am

G-Day Supreme, I agree with you 100%. Welcome aboard. Regards, IGGIE

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HenryM
Dec 01, 2024 10:07 am

Thumbs up, Superme.  Good post.  

oldtimer
Dec 01, 2024 2:37 pm

I left my exes in Texas.

All my exes live in Texas
And Texas is a place I'd dearly love to be
But all my exes live in Texas
And that's why I hang my hat in Tennessee

You are an upbeat and funny man, Superyou.

Jayne
Dec 01, 2024 5:06 pm
Reply to IGGIE

ditto

 

Getting Support in the Ostomy Community with LeeAnne Hayden | Hollister

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Megs
Dec 01, 2024 8:37 pm

A great uplifting post for all us ostomates.  Here's to a continuing good and healthy life these ostomies have given us.  

Superme
Dec 02, 2024 4:25 am
Reply to HenryM

Thank you Henry! Be well!

tdonaldson
Dec 09, 2024 11:44 am

Thank you for this uplifting post.  My husband went in for a minor procedure in late June of this year.  He woke up with having 1/2 of his colon removed, which saved his life, a stoma and a bag.  It has been life changing for both of us. Physically, he is healed. Mentally, he continues to struggle.  I read him posts all the time from this wonderful group. We have tried many of the suggestions you all have provided. I especially like to share the funny stories and posts with him. 

Redondo
Dec 10, 2024 4:32 pm

Hi

I have had my ileostomy for almost 50 years. I don't mind letting anyone know that I have one. I'm not ashamed of it because I'm thankful I have lived a full life with it. I also think it might help others to know that I have one in case they or someone they know might need one. However, the other night, we were at a party with a group of 20+ friends, men and women, and someone was joking about their dog having to sometimes squeeze one out. One of the women responded by saying that sounds like Connie. Most of the group know I have a bag, but I was a little horrified that she joked about my situation in front of everyone. I didn't say anything, but I'm sure she and everyone else saw the horrified look on my face. I haven't said anything to her about this and wonder if I should. She is someone who is insecure about herself and sometimes finds it necessary to poke fun at others, and sometimes especially at me. Sometimes I just approach her comments by poking fun at myself, but this did hurt me just the same that she did this.

Jayne
Dec 14, 2024 12:57 am

As you say - insecurities - just put such comments in the basket from whence they come ;-(

 

Good time of year though for social interchange - do not allow this hurtful comment to phase you ---whoops just noticed caps - sorry ..............

 

Sending best wishes

 

~ ~ ~ ~ ~ waves from the hills ~ ~ ~ ~ ~

Jayne