measure and record ilostomy output

  Has anybody's doctor requested they measure and record ilostomy output for doctor to supposievely determine health?

They did mine while I was in the hospital but not once I got home. 

I had to measure for the first few weeks after I was home… Are you concerned about the reason the Dr asked you to do it or something else?

Yes when I first had my ileo nurses did in hospital and when I had my jejunostomy nurses did again  and I had to at home occasionally.....why does your doctor want you to measure it are you having high output or loosing weight 

When I was in the hospital with a blockage I had to do that, but not at home. I tracked it at first at home to know when to take imodium but now I don't need to do that anymore because I don't usually have enough output to need imodium. But only in the hospital did I have to record that by a doctor's order. Maybe your doctor is just doing that because you are a new ostomate?

Staying Hydrated with an Ostomy with LeeAnne Hayden | Hollister

Only while in hospital for a short period to determine if everything was flowing and functioning ok.

Me three..only in the hospital and I had to measure fluid input and output. 🙄

Some have an easy surgery and get out and measure at home etc.

Guess it all depends how ill you were.

Now since your rather new to this, you should copy and save this nutritionist list of what foods to eat and NOT to eat with an otosmy.

Some foods produce a huge amount of liquid output, we call it diarrhea and deep fried, fatty, heavily seasoned or salty foods are at the top of the list. But there are others. Enjoy!

I do drink plenty of water and an electrolyte drink occasionally. I ensure I'm urinating and it's a normal yellow or clear, not dark orange or dry which would indicate dehydration.

Coffee can make output very acidic making the burns far worse. Caffeine can cause diarrhea where the stoma just keeps spewing for hours. Dried Chinese Crispy Noodles, Cheerios or applesauce (peeled apples) or bananas are the exact opposite, a stool thickening food. By mixing these with other foods one can manipulate their stool output and counter the issues above. Also the severe thickening helps in cases where one has severe diarrhea and unable to reattach a new bag due to high flow.

Eating Guide

Partially copied from my nutritionists guide. Ileostomy Nutrition Therapy from the Academy of Nutrition and Dietetics. (This handout may be duplicated for client education.)

My recommendation is to see a nutritionist for the full guide as not all can be pasted here

I've added my own observations to further clarify 

Chew all foods well to the consistency of paste. Spit out any hard stuff or can't chew. Important!

Foods That May Cause Blockage (very bad avoid!)

Apples, unpeeled (peeled and applesauce are excellent thickeners, don't eat the skins or the core, chew well)

Bean sprouts, Cabbage

Casing on sausage (inside fine if no tough parts, avoid swallowing if a chunk is felt) Also sausage like meats like pepperoni and salami contain indigestible bits.

Chinese vegetables (stir fried crunchy, too hard, need very soft veggies with no skins)

Coconut, Coleslaw, Celery (avoid)

Corn (grits also, corn anything doesn't seem to dissolve in stomach)

Cucumbers (skins bad, inside chewed up good seems okay, no seeds)

Dried fruit, raisins

Grapes, blueberries etc. (skins and seeds the problem.)

Green peppers (red, yellow also) pureed or very very small and soft seems okay in small amounts 

Mushrooms (doesn't dissolve in stomach) pureed or very very small seems okay in small amounts 

Nuts (totally avoid)

Peas (mushy interior okay, like pea soup, skins a problem)

Pickles (skins a problem, inside if chewed up good seems okay, seeds not)

Pineapple (liquid okay, mushy parts fine, hard parts not, rather risky as parts of mushy may not digest)

Popcorn (totally avoid)

Potato skins, inside (no hard parts) fine.

Relishes and olives

Salad greens (diarrhea nightmare too)

Seeds and nuts (avoid) Watermelon seeds bad 

Spinach (doesn't digest, pureed perhaps)

Tough, fibrous meats (for example, steak on grill, well done, tough parts especially, over grilled chicken or dry pork chops. Juicy grilled or pan fried chicken, shredded pork in juices, medium rare steaks, hamburger better. Nothing deep fried ever, dirrarea city.

Vegetable and fruit skins, (any avoid)

Whole grains (no grits, rolled oats oatmeal seems to be okay, oat cereal is an excellent thickener)

Foods That May Cause Gas or Odor

Alcohol, Apples, Asparagus (stink), Bananas, Beer, Broccoli (clog hazard)

Brussels sprouts (clog hazard)

Cabbage (clog hazard)

Carbonated beverages

Cauliflower, Cheese, some types like any cheese food is bad. Real cheese may be okay. Provolone, Swiss, Cheddar, not American white or yellow 

Corn (clog hazard), Cucumber skins and seeds bad.

Dairy products (toot city, small amounts okay)

Dried beans and peas (clog hazard)

Eggs (some don't digest in stomach like scrambled or omelets, but over easy seems fine for some reason)

Fatty foods, Grapes

Fish (cooked unseasoned salmon in small portions may not, nor stink, same for raw tuna seems fine)

Green pepper (red and yellow also, clog hazzard unless very small and very soft in small quantities)

Melons, Onions (clog hazard)

Peanuts (clog hazard) Prunes

Radishes, Turnips

Soda and sipping using straws, (drink from glass instead)

Seafood (smell rotten stink!)

If your having vacuum caused pancaking issue a small amount of something above (like having a soda during a meal) could introduce some air into your diet and thus into the bag. Also by avoiding too much thickening foods by themselves which often contribute to pancaking of the output.

Foods That May Help Relieve Gas and Odor

Buttermilk, Cranberry juice, Parsley

Yogurt with active cultures (Greek yogurt)

Foods That May Cause Diarrhea (looser or more frequent stool)

Alcohol (including beer)

Apricots (and stone fruits)

Beans, baked or legumes (clog hazard)

Bran, Broccoli, Brussels sprouts

Cabbage, Caffeinated drinks

Chocolate

Corn (in my experience corn anything doesn't digest in stomach, just passed through and out, kernels/popcorn will clog)

Deep Fried meats, fish, poultry (KFC, supermarket rotisserie chicken very bad, and anything soaked in brine)

Fruit juice: apple, grape, orange (small amount okay)

Fruit: fresh, canned, or dried (small amount skinless okay)

Glucose-free foods containing mannitol or, sorbitol

Gum, sugar free, Licorice

High-fat foods, High-sugar foods

High salt foods (KFC, supermarket rotisserie chicken)

High seasoned foods (like blackened)

Milk and dairy foods (small amounts okay)

Nuts or seeds (bad, clog hazard)

Peaches (stone fruit, one skinless a day okay)

Peas, Plums (stone fruit).

Pork (chops, fatty)

Prune juice or prunes

Soup, Spicy foods

Sugar-free substitutes

Tomatoes, doesn't digest (soup okay) Turnip greens/green leafy

Vegetables, raw

Wheat/whole grains, Wine

Rice (very soft 1/4 cup in mixed in food okay, like in soup), refried beans (1/4 cup okay) pasta (one cup max).

Any foods soaked in brine or deep fried (rotisserie chicken, Kentucky fried chicken etc)

Solent nutritional meals 

Foods That May Help Thicken Stool

Applesauce (peeled apples, no cores)

Bananas, Barley (when OK to have fiber)

Cheese (processed cheese food a clog problem, use real cheese)

Dried Chinese Crispy Noodles (severe thickening, mix with other food that causes diarrhea)

Marshmallows

Oatmeal (when OK to have fiber)

Pasta (sauces may increases symptoms) (in my experience more than a cup of pasta causes diarrhea)

Peanut butter, creamy only, nuts clog (may make skin greasy)

Potatoes, no skin (skin clogs, more than a cup may cause diarrhea)

Pretzels (salty may cause more flow water consumption)

Metamucil, mix or crackers (mix in cup of water and drink before it gells up)

When I read your message, I envisioned Dr. John Harvey Kellogg in The Road to Wellville movie. 🤔

When your in the hospital they always do until you go home. Then they will normally send you home with some measurement cylinders. Couple reasons your doc would you too . One if you were slower than normal , another is if your too liquidity . You don't want to have less than 700 cc and you don't want to exceed 1400 . 

They only checked in the hospital, but I had a JP bag I had to measure and write down at home. Mostly I'm asked about my output, or how often a day I empty at home.