Ileostomy and Back Passage Removal Surgery Experience

Hi everyone,

I am new to this site. I have had an ileostomy for the last 5 years due to Crohn's disease. On Thursday, 3rd May 2012, I am going into the hospital for surgery to have my back passage removed as it has been giving me a lot of trouble over the last 12 months. Crohn's is present in the stump, and foam and everything else has been tried, but it just doesn't work anymore, so it has to come out. I am not afraid of the operation, but when I wake up, I just don't want to be in any pain!
If anyone has any advice, it will be much appreciated! Nikkixx

Don't be worried about pain. I had mine done and can't remember being in any real pain after my operation; modern anesthetics are wonderful things, spaced man!
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. When you're off the powerful pain relief, the healing process will be well underway. The minor discomfort you will encounter will be so worth it when all those complications your back passage has been giving you are a thing of the past. Just look forward to no more drugs and foam. The best of luck, DD.

Thank you so much for your reply. I hope this is the case for me also.
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I had this surgery last June and was really scared as it is very difficult to get my head around; however, I had good pain relief immediately after surgery and was back home within the week.
The healing process for me has been quite lengthy. I have been told this is normal. Please don't worry, I wish you all the best and a speedy recovery.

AWWW, I'm so sorry. Have I missed your surgery date? I went through this operation in 2008, and yes, that rectal foam didn't help me with my Crohn's and stricture right above the stump that was left after the 7 previous ops. The biggest thing that happened to me was I had an awful infection 3 days post-op. Please try not to even use those toilets. Ugh, sorry, but my supposed rectum was gone with water pouring out. I also needed a blood transfusion, which seemed to make me sick as soon as it got to my bloodstream. No, they didn't listen until the next day when I was told, "Oh, you had a bad reaction to your blood type." Well, blow me down. Ugh...

I was in for 10 days and couldn't seem to feel any better for a much longer time. I still have mucus weeping 4 years later but was told it's "normal in Crohn's patients." Ugh, what a load of shite. I'm so sorry if I have missed you. But good luck, this was my experience only, and it looks like it wasn't as bad for some other people on here. It seems we can't all have the perfect operation, or more to say, after the damage is done... If only I knew, I would have left having my stoma and rectum intact, but we don't know the future. Plus, it was my 8th operation since 1995, so I guess having severe adhesions, saying this might be your first and last operation, maybe if I only had 1-2 operations, things might have been better in my circumstances. If anyone doesn't really need too much surgery, I would say these days, "HELL NO," except for plastic surgery. Hahaha, true
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xxxxxx MOOZA X

Oh, by the way, my real problems are adhesions - severe scar tissue damage. I have no feeling in many places on top of the abdomen. I'm going to try and get acupuncture a few days a week. Fingers crossed it will be on my Medicare, so I don't have to pay. I've spent lots of money. Another tool is a TENS machine. LOL, it helped for 4 weeks. Also, Lyrica helped put on 8 kgs, thus then getting 2 lovely hernias, that have been ummm fixed in March. LOL, still waiting to chat with the surgeon on how my abdomen really looks. I wanted adhesions somehow released. Looks like it didn't work. Back to my visceral pain again. Sorry about the caps, too lazy to turn it off. Hahaha, cheers and best of luck. MOOZA REM- We are all different. xxxxxxx
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Getting Support in the Ostomy Community with LeeAnne Hayden | Hollister

Hi, I had this surgery done almost 4 years ago. Like you, I was having problems with leaking, but I had UC. The doctor wanted me to try rectal meds; I told him I wanted it gone. You get great pain relief, but I would advise you to get a doughnut (cushion) as it will help when sitting. I found mine great.
I don't know if I spelled that right, sorry. Hope this helps. All the best, Braveheart.

Hi Nik, I have to disagree with BraveHeart and not get a donut pillow as they tend to spread the cheeks and cause discomfort. I would recommend an egg crate type of pad or pillow. Good luck with your surgery and a fast recovery.
Ron in Mich

Hi everyone

Thank you so much for all your comments
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It has been nearly 6 weeks since my operation, and apart from an infection in my stitches in my bum, it's been fine. Most of the pain was from my stomach and drain area, which is still sore. I think all the stitches have dissolved. I am able to sit on my bottom without any help! Still a few twinges, but I feel fine
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. I'm so happy I am not in any pain compared to before the operation. I feel loads better. I am back at my home now. I can take care of myself. I still have tired days, which reminds me I am not 100%. I hope I will be able to go back to work in the next 2 to 3 weeks; otherwise, the boredom of TV is going to finish me off! I haven't had a cigarette since the 2nd of May. I hope this continues when I return to work. Nikkix

Over 3 years without a smoke or drink and then I get cancer. Not saying it is not the best thing I have ever done and how much extra money I have now, but it really sucked for me. But I will never smoke again; even with the cancer, I feel a lot better now not smoking.

Glad to hear about your improving health. Hope you are soon able to even kick watching The Days of Our Lives. That should drive anyone back to work.

Good luck,

Bob

Hi Bob

Thanks for your reply. My sister and I used to watch Days of Our Lives, LOL! If we're talking about the same one, the American one! Haven't seen it for some years. Over 3 years without a smoke or drink, then you get cancer—that does suck! Hope your health improves. Take care.
Nikki