Dealing with Ileum Stricture After Ostomy Surgery

In February 2012, I had Protocolectomy surgery and recreation of my ileostomy.  I've suffered from continuous blockage on a weekly basis for at least 6 months.  Needless to say I assumed it was what I ate.  In late June I finally couldn't take the pain and went to the er and low and behold it was a stricture in my terminal ileum.  



Apparently my terminal ileum was so eroded, the doctor said I probably had this stricture for at least 4 to 6 months.  We are so use to dealing with pain and we all dread going to the er only because lack of knowledge the medical staff has when it comes to standard care for ostomy patients.



My message is to listen to the signs of the physical pain and if you think something doesn't seem right, don't wait as I did because the doctor said if I waited any longer my condition would have led to far serious issues.



Has any one experience something similar and can share their experience or offer any suggestions.



Thank you for listening.



Debra

Excellent advice dear, I hope you are feeling better!! xoxoo .......oh yes, I have had similar situations, and unfortunately my last battle with that turned into a nightmare, due to Doctors not listening to me and their mis-diagnosis and YEARS of dangerous 'treatments' and medicines that did no good, but in fact caused perm harm......until FINALLY I found a surgeon who 'listened' to me........we know our bodies better than anyone else, and finding the right Medical Team Members to help you is a careful and sometimes frustrating thing......the surgeon could not believe I was forced to go as long as I was, to the point where he was amazed, with all the complications it all caused, that I survived......I needed another surgery right away.........it was a miserable thing....but it was long overdue.



Always take your pain serious, listen to your body, and be as proactive as possible in finding the right Medical Professionals to help you.........



Great post Debra!!

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~Doe

Wounded Doe,



Thank you for your reply and yes I agree with your last sentence.  Well said. I spent more time training most of my nurses on how to care for an ostomy patient while I was in the hospital so it was a very useful stay because they loved having the information directly from a patient with experience.  The head of nursing actually asked if I would consider putting together some fact sheets for the nurses.



Ironically I use to be a trainer and considering doing something on a big scale with ostomy care education.



Debra