Greetings all. I stumbled across this website last night and would really appreciate any advice from the community here on a potential upcoming ostomy reversal. This is my first post here and I apologize in advance for the length.
I'm ~6 weeks out of the hospital from emergency surgery that involved: removal of a (non-cancerous as it turns out) blocking mass in my colon (that was bad enough the doc couldn't get the colonoscopy instrument past it to examine the rest of my colon), removal of my appendix, and repair of a fistula that I had developed between my colon and bladder; all the result of allowing things to fester too long.
The appendix was a surprise to the surgeon (and me) once he opened me up. Although things from my hospital stay are somewhat fuzzy, I think he said it was gone (could have been hyperbole) when they went in and that my immune system evidently worked as it should and walled that area off from the rest of my body. The docs weren't certain how the progression went and whether these problems started with the appendix or my colon, and progressed from one of these places to other organs. Pathology (after finding no evidence of cancer) did at the very end of my 11-day hospital stay find evidence in the removed mass of what might have been Crohn's disease. My understanding is that things are still not entirely clear in terms of what the exact cause of all this was, although I'm pretty sure things started in my colon given years of occasional unpleasant gut issues that I had always chalked up to poor eating habits... as a change in habits always seemed to resolve whatever was ailing me. The thought of some sort of autoimmune bowel disease had never occurred to me until a flare-up several months ago was so painful that it propelled me to try and get to the bottom of what was causing the symptoms. I have always been real healthy in all other respects and had never been to a hospital except to fix a broken bone in my hand.
Everything went my way as far as the procedures and the recovery go. I'm doing great and I feel and look much better now than I have in months. I've been discharged from (in-house) physical therapy and will start hitting a gym next week. My recovery has been surprisingly rapid (I'm told) given that I went into the hospital looking like an escapee from a concentration camp due to a lot of weight loss. I could hardly stand to look at myself in the mirror and see a complete stranger staring back. I was anemic and required a blood transfusion and other IV drips before the colonoscopy and other procedures. My white blood cell count was 30,000 upon admittance. I was told after the fact by my mom that one of the nurses told her that all of the hospital staff on the floor I was on were all real worried about me initially.
As I mentioned, things from my hospital stay are somewhat hazy. I'm pretty sure I have a colostomy and not an ileostomy. I have a (single) stoma that is an inch or so to the right of and immediately below my belly button and a mucous fistula a couple of inches right above my belly button, which seems to indicate to me that the stoma is from my ascending colon. My rectum is still there and I seem to have fairly normal sphincter control in passing the occasional expected mucous from there. I'll have to confirm the details of what was done with the surgeon next week, but I'm pretty sure all that was removed from my colon was the area of the blocking mass, but I'm not entirely sure just how much of my colon was removed. I was told there were no signs of any bowel disease in the rest of my colon.
As far as a reversal goes, I was initially told that the timeframe for doing so would vary depending on recovery/healing progress, but would likely be in the neighborhood of 2-6 months. Now it seems like the surgeon is thinking 2 months after the initial procedure, which is only a couple of weeks away (yikes!). I had assumed that after a short recovery that I would be back to feeling good like I am now, but after finding this website and staying up all night reading about all the reversals with less than a happy outcome, I got both concerned and depressed. I was already not looking forward to having to go back into the hospital. Again: any advice would be greatly appreciated.
I'm 46 years old and am otherwise in excellent health, which I can confidently state after all the blood work, EKG and sonogram of my heart, X-rays and CAT scans. I've put on a healthy amount of weight since getting out of the hospital and my overall strength and energy levels are much improved, so I would be going in this time in a much improved state compared to my last hospital experience.
As a side note, I'm convinced based upon my own research into the experiences of others, as well as empirical evidence and even recent experiences of my own, that all these chronic autoimmune diseases of the bowel (e.g., Colitis, Crohn's disease, Diverticulitis) and other organs - not to mention a whole range of other types of diseases - can be effectively reversed through a change in diet, certain natural supplements, and other lifestyle changes (e.g., stress/attitude management, exercise).
Suffice it to say that conventional Western medicine is mostly clueless when it comes to the cure and prevention of chronic disease. As amazing as they can be in dealing with, for example, situations requiring emergency surgery, in general they get a failing grade when it comes to the actual prevention and curing of chronic diseases. What we have can't honestly be called a healthcare system. It's a sickness care system; heavy on surgeries and poisonous synthetic drugs that cure squat, simply mask symptoms, and frequently come with unhealthy side effects. That's where the money is, however. You can't patent a plant or a change in lifestyle. /stepping down from soapbox.
I'm ~6 weeks out of the hospital from emergency surgery that involved: removal of a (non-cancerous as it turns out) blocking mass in my colon (that was bad enough the doc couldn't get the colonoscopy instrument past it to examine the rest of my colon), removal of my appendix, and repair of a fistula that I had developed between my colon and bladder; all the result of allowing things to fester too long.
The appendix was a surprise to the surgeon (and me) once he opened me up. Although things from my hospital stay are somewhat fuzzy, I think he said it was gone (could have been hyperbole) when they went in and that my immune system evidently worked as it should and walled that area off from the rest of my body. The docs weren't certain how the progression went and whether these problems started with the appendix or my colon, and progressed from one of these places to other organs. Pathology (after finding no evidence of cancer) did at the very end of my 11-day hospital stay find evidence in the removed mass of what might have been Crohn's disease. My understanding is that things are still not entirely clear in terms of what the exact cause of all this was, although I'm pretty sure things started in my colon given years of occasional unpleasant gut issues that I had always chalked up to poor eating habits... as a change in habits always seemed to resolve whatever was ailing me. The thought of some sort of autoimmune bowel disease had never occurred to me until a flare-up several months ago was so painful that it propelled me to try and get to the bottom of what was causing the symptoms. I have always been real healthy in all other respects and had never been to a hospital except to fix a broken bone in my hand.
Everything went my way as far as the procedures and the recovery go. I'm doing great and I feel and look much better now than I have in months. I've been discharged from (in-house) physical therapy and will start hitting a gym next week. My recovery has been surprisingly rapid (I'm told) given that I went into the hospital looking like an escapee from a concentration camp due to a lot of weight loss. I could hardly stand to look at myself in the mirror and see a complete stranger staring back. I was anemic and required a blood transfusion and other IV drips before the colonoscopy and other procedures. My white blood cell count was 30,000 upon admittance. I was told after the fact by my mom that one of the nurses told her that all of the hospital staff on the floor I was on were all real worried about me initially.
As I mentioned, things from my hospital stay are somewhat hazy. I'm pretty sure I have a colostomy and not an ileostomy. I have a (single) stoma that is an inch or so to the right of and immediately below my belly button and a mucous fistula a couple of inches right above my belly button, which seems to indicate to me that the stoma is from my ascending colon. My rectum is still there and I seem to have fairly normal sphincter control in passing the occasional expected mucous from there. I'll have to confirm the details of what was done with the surgeon next week, but I'm pretty sure all that was removed from my colon was the area of the blocking mass, but I'm not entirely sure just how much of my colon was removed. I was told there were no signs of any bowel disease in the rest of my colon.
As far as a reversal goes, I was initially told that the timeframe for doing so would vary depending on recovery/healing progress, but would likely be in the neighborhood of 2-6 months. Now it seems like the surgeon is thinking 2 months after the initial procedure, which is only a couple of weeks away (yikes!). I had assumed that after a short recovery that I would be back to feeling good like I am now, but after finding this website and staying up all night reading about all the reversals with less than a happy outcome, I got both concerned and depressed. I was already not looking forward to having to go back into the hospital. Again: any advice would be greatly appreciated.
I'm 46 years old and am otherwise in excellent health, which I can confidently state after all the blood work, EKG and sonogram of my heart, X-rays and CAT scans. I've put on a healthy amount of weight since getting out of the hospital and my overall strength and energy levels are much improved, so I would be going in this time in a much improved state compared to my last hospital experience.
As a side note, I'm convinced based upon my own research into the experiences of others, as well as empirical evidence and even recent experiences of my own, that all these chronic autoimmune diseases of the bowel (e.g., Colitis, Crohn's disease, Diverticulitis) and other organs - not to mention a whole range of other types of diseases - can be effectively reversed through a change in diet, certain natural supplements, and other lifestyle changes (e.g., stress/attitude management, exercise).
Suffice it to say that conventional Western medicine is mostly clueless when it comes to the cure and prevention of chronic disease. As amazing as they can be in dealing with, for example, situations requiring emergency surgery, in general they get a failing grade when it comes to the actual prevention and curing of chronic diseases. What we have can't honestly be called a healthcare system. It's a sickness care system; heavy on surgeries and poisonous synthetic drugs that cure squat, simply mask symptoms, and frequently come with unhealthy side effects. That's where the money is, however. You can't patent a plant or a change in lifestyle. /stepping down from soapbox.