Ileostomy and Proctitis: Seeking Treatment Experiences

Hello.  I wanted to get some feedback from any people who have an ileostomy and  have had any issues with proctitis.

If you have had this, please let me know any treatment(s) you tried and the outcome.

Many thanks

Hi NorthLA, I have had proctitis for over 8 years following ileostomy operation where the stump was left. I have never been able to cure it fully but have found that PREDNISALONE RECTAL FOAM and flushing with PREDSOL RETENTION ENEMA gives relief from the symptoms (bleeding and mucus) but after a while the problems come back. If you do find a permanent cure please let us all know as the medical people can only suggest more surgery to remove the stump as a permanent cure.

Hi NorthLA,

I had the rectal stump left as well. Contiued to have problems and the 'fixes' like foam and enemas just didn't work. And still has UC in the rectum. It was almost as bad as before with some of the symptoms.

Almost constant inflammation, mucus, blood ... my body had already dealt with that for over 30 years ...

So decided to have a protectomy ... and haven't looked back.

If you decide to go that route, look for a colo-rectal surgeon and dicuss whether it is possible to have the op done laprascopically. Recovery from this op can be difficult, but I was up and without any pain in a week tops.

Wishing you the best.