I did suffer from pyoderma gangrenosum in 2010. However, the name sounds horrific, but having it in reality is even more tragic. My heart is with you. The pain is unbearable, and you feel like your skin is eating itself inside out. I am sorry I cannot help much as I had it in a different place on my body. I will also share my story here as this is the first time I come across a post talking about PG on this website. Read the CAUTION below if you don't want to read all the replies. I am telling my story to also let you know that you are not alone in this world. It does happen. This condition was on EMBARRASSING BODIES as well, a dude who had it in his leg. You might want to watch that too.
Apparently, it is a rare side effect for people who have IBD. I had 3 pus-draining surgeries because of PG. Plastic tubes (straw-like) were implanted in my forehead. The pus was so close to getting back to my eyes and the brain, which could cause severe intoxication (death was a possible thing too). They only told me that after everything settled down. Thank God... I have been saved again!!
I was too doped under painkillers, went to the toilet after the second surgery (the tube implants), the dressing came off and looked at what they had done in the mirror. Boom (the biggest shock of my life). I think I was in a panic attack, almost thought of suicide by letting the blood out of the drip syringe overnight. My belief in God is the only thing that had stopped me from doing so.
Treatment
PG had put me in the hospital for 22 days in the summer of 2010. I was on all treatments that had proven efficiency with PG as it was very dangerous in my situation. So, all types of intravenous antibiotics then followed by steroid injections and finally anti-TNF blockers (double doses of Remicade). I was seen by an average of 10 doctors every day as they have never experienced treating such a condition. They had to take photos and talk to doctors in London and even a dermatologist in India to reach that treatment plan. They told me at the hospital the key is to keep it always clean and to change the dressing every 2 days max when I get back home.
The treatment plan worked for me. 3 months later, it was fully gone, leaving a large scar on my face. Luckily, I have massive hair that covers what happened there.
I had a couple of PG flare-ups, but they were minute and were overcome by a low dose of oral steroids.
However, I had experienced some really bad downs with colitis, arthritis, or even the ostomy, but PG is the worst I have ever come across so far, and I won't wish it on my enemies EVER. It is disfiguring!
......................................................... CAUTION.............................................................
MY ADVICE TO ALL PEOPLE WHO HAVE IBD. Once you have a spot that's only going WORSE and there is AN INCREASE IN pus discharging OVER 3-5 DAYS... DO NOT WAIT. EVER. It starts very small like acne/small abscess. IF YOU DON'T GIVE IT ATTENTION from the start, IT WILL eventually eat/rot your skin. I am not scaring you to run to the A AND E once you have a spot. What I'm saying is to keep an eye on it and to warn the doctor that you have IBD and this may be something else. A stupid ignorant doctor at the A and E sent me back home with 250mg antibiotics. He thought I'm overacting the pain of an abscess. 3 days later, I was in the operating room.
May God be with you...