Have had ileostomy for 3 years -called Winnie (the poo) but have also had MS since I was 15 -I'm 61 now. Is there anybody else out there with the same combination? Please write. Would love to hear from you. Belinda
Belinda
Nov 08, 2007 11:14 am
Past Member
Nov 10, 2010 1:27 pm
Hi Belinda, well, there's me with M.S., and when I had my op there was talk amongst the nurses of a vicar's wife with both diseases, so we are about!!
I manage quite well, but what worries me is if I get another attack my hands would have no feeling for the intricate dealing of a bag change, or worse still, a bag leak, dread the thoughts! I have had M.S. since I was 23years, but symptoms not recognised by me, were present from the age of 20. I have been totally paralysed twice, both times taken about a year to get back to "normal", several minor attacks taking 4months to get back again, and been in hospital 3 months at a time, twice.. I would be interested to hear how you manage.
I manage quite well, but what worries me is if I get another attack my hands would have no feeling for the intricate dealing of a bag change, or worse still, a bag leak, dread the thoughts! I have had M.S. since I was 23years, but symptoms not recognised by me, were present from the age of 20. I have been totally paralysed twice, both times taken about a year to get back to "normal", several minor attacks taking 4months to get back again, and been in hospital 3 months at a time, twice.. I would be interested to hear how you manage.
Why Join MeetAnOstoMate?
First off, this is a pretty cool site with 37,000 members who truly understand you.
It's not all about ostomy. We talk about everything.
Many come here for advice or to give advice, others have found good friends, and some have even found love. Most importantly, people here are honest and genuinely care.
🛑 Privacy is very important - we have many features that are only visible to members, ensuring a safe and secure environment for you to share and connect.
Create an account and you will be amazed by the warmth of this community.