Well, I've been in the hospital now since late Wednesday night. I had another blockage and this time the CAT scan showed another problem and enlarged intestines. I have had bad bouts of pain since getting the first emergency surgery. I was basically unable to eat anything without difficulty. I have been telling the doctor for the last 5 months that something was not working right. My output was very loose all the time and nothing like it was described. By 7 months, I should have had a pretty decent diet set up but the only thing that I could eat was Ramen, soup, and other light foods. I read where most folks could eat most anything a few months out and I had issues with almost everything. Well, I was admitted early Thursday morning and had surgery at 0730 on Friday for a redo of the ileostomy. The doctor got in there and immediately saw a stricture that he said he was flabbergasted at how tight it was. He stated he couldn't believe that anything could have gotten through it. There were also very large adhesions that were present. He had to cut out the stricture and rebuild the ileostomy and enlarge the area and cut away the adhesions so things would move better. He said the bowels were very swollen and thick. He seems to feel things will be better now and that I will be able to eat better and things will move through better. I am now back at square one again so I hope this is the end of this roller coaster ride. I hope I don't lose the rest of my hair due to this surgery. I lost three quarters of my hair with the last surgery. Time will tell. I am walking now without assistance and am eating a soft diet now. I think I can go home Tuesday or Wednesday.
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MeetAnOstoMate website turned out to be a lifesaver for me. I say this because, for me, this ostomy journey was a devastating event both physically and mentally.
Here, I found folks who understood my feelings even better than my family or friends could. Only a fellow ostomate can understand how you really feel.
Information sharing is key, as well as support and understanding, to ultimately bring more harmony into our ostomy life journey. I found here, virtually no ostomy questions that are not touched upon. Questions which some might feel, may be too trivial to contact a doctor about or even too shy or embarrassed to ask their own doctor about. They are all addressed here.
For me, anonymity was very helpful in seeking answers to each phase of this life changing medical and mental event. Sharing initial trauma feelings, ongoing support and finally acceptance was what I found with my membership here. I am not sure what my mental and physical attitude would be today without having found this site.
Additional benefits included: finding products and ideas to help with daily maintenance, innovative ideas and as a bonus - some great humor.
After all “laughter IS the best medicine”.
I have been a member for 3 years, an ostomate for 4 years - yes, I certainly wish I would have found it immediately after surgery but so very thankful I finally found it when I did as I truly believe it turned my troubled depression and situation into a more positive attitude and acceptance.
Sincerely,
An Ileostomate nicknamed Justbreathe 🫶🏼
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